Doctors seem to think PMR will go away after a few years. Am I confusing PMR with arthritis?
Polymyalgia rheumatica is a disabling arthritic condition characterised by severe pain and stiffness in various muscles.
Most people make a full recovery from polymyalgia rheumatica and, unlike some forms of arthritis it does not cause any progressive disability or deformity.
I was diagnosed at least ten years ago after waking up one night and not being able to turn over in bed. Blood work showed that I had an elevated SED rate, and my internal medicine doctor sent me to a neurologist. He thought I might go into remission within two years, but I never have. Prednisone seems to be my only solution. I have tried weaning myself off of it several times without good results and then have resumed taking it. I can manage on 5 mg. per day unless I have a flair up. I was taking a statin drug for cholesterol and my doctor removed me from it as an experiment and my pain decreased tremendously, but I still need the prednisone. When I'm not on prednisone I walk like a person in their 90s and cannot bend over, dress myself, etc. I have accepted that I will probably always have to take the prednisone. Unlike some people who mentioned weight loss, I never had anything like that and I tend to put on weight easily on the steroids. I would like to lose weight to help with my general condition and my fatigue. I manage fairly well on 5 mg. of prednisone and have accepted that this is my fate in life. As hard as it is to deal with, I realize that there are many worse conditions than PR. So far I have not had any symptoms of GCR.
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