... doing well, but my pain is getting worse & worse. Both kidneys are extremely large & the cysts are getting bigger as well. Does anyone else out there have pain?
I was diagnosed with PKD 20 years ago. My function is at 19%. I very rarely have kidney pain, but when I do it is usually related to an infected cyct (rarely for me), or a cyst that has burst. The pain usually resolves itself in a day or so, unless it is infected in which case antibiotics are called for. My daughter who also has PKD has quite a bit of flank pain that requires rest to relieve the pain. As your kidneys enlarge, they can also push on other internal organs causing problems... What does your nephrolygist say?
Hello. Thank you for your responses. I have seen alot of different doctors, and they all say the same thing. There is nothing they can do for me. They just put me on pain meds and send me on my way. THe pain is getting unbearable as I get older. I am almost 30 and I honestly feel closer to 70. I am a pretty tiny person so i think that my kidneys are just too big in there. i can barely eat anymore because there is just no room. my lower back is now swollen because of the size. i am really thinking that i want to try that laser surgery where they go in and laser off most of the cysts. i understand that they will grow back, but maybe i might have some relieve for a year or so. Have any of you done that surgery?
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