The side effects from the steroids are out of control. I have trouble going up stairs, my leg muscles have really atrophied. I can't get out of the tub any more. I get claw like hand and foot spasms. Tremors in my hands. Bp 122/94. Anyway, I read about the potential life threatening infections and I worry. My doc said it has been very well tolerated by his patients and he has had patients respond after just one dose. I really need to hear from you. How are you tolerating it? It's such a big decision.
Hi! I am starting Actemra next week for the same conditions you have however I have been on prednisone off and on since 2004 and only learned about Actemra when switching rheumatologists. I was wondering if you went ahead with the Actemra and if so, how are you doing? I've read two recent studies where 100% of the participants went into remission within 3 months. Thanks for your time!
Hello. I too have PMR and GCA. I have been on Steriuds for a year and a half. My pain never goes away. I clench my teeth most of the time. My blood sugar is high with the prednisone. For these years 1 1\2 ,my steroids have been up and down with a high See rate never being in the normal range for more than a few weeks. Then it begins again. So this Monday I get my first infusion of Actemra. I am very nervous and worried,but I so want to be well again. 6 years ago I had another auto immune disease,Skin Vasculitis. What an ordeal that was. I'm in remission with skin Vasculitis. So onward and upward. I can let you know how my first infusion goes. Take care
I have been on Actemra for 2 months and so far I have had not problems. It does seem to be helping me. I still have to also inject methotrexate every week but I hopeful that I can stop Methotrexate soon. I do have severe RA so this is way my doctor wants me to take both. Good luck to you!,
- Actemra Information for Consumers
- Actemra Information for Healthcare Professionals (includes dosage details)
- Side Effects of Actemra (detailed)
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