I am 50 yrs. I have been in pain for 16 yrs. I contracted polio at 5 yrs. ( I did not know I had it. My mother died when I was a child ,so I had no one ot help me). I walked w/ a limp all my life. The wear and tear on my body,and being uneven. ( my right shoe size is a 7 ,my leg is atrophied and weak. My left shoe size is a 9 ) the neurologist diagnosed post-polio syndrome in 2005 and put me in physical therapy and pain management, I saw a physcologist, an orthodic maker , he built me a right kafo brace with a frankenstein shoe lift. ( the damage to my body was already done). 2 weeks ago, I was diagnosed w/ fibromyalgia. I lose my balance( very high risk for falling) and fall very easy( sometimes 4 x a month). I am on coumadin 5-7. 5 mg. 7 days a week. Alternating doses per day. I now, use a rolling/seated walker , I have post-polio syndrome. With, arthritis in both hips,both shoulders ,my spine( also scolosis) I had a total left knee replacement, and bone on bone and severe tears in 3 compartments of the menisicus in my right knee. I need a right total knee replacement now. Also,i am always in pain. If it wasn't for my belief in jesus I would have killed myself a long time ago!!! The pain is so bad ,it never lets up. Please help me!!! I was in pain management the past 6 years with insurance until a dvt and pulmonary embolus 3 weeks post total left knee replacement caused me to lose my job, my insurance, everything!!I became severlly depressed... I only get a social security disability check. ,i dont get medicare ,i do not qualify for medicaid, I have no insurance. I go to a free clinic. I have a rx. For 36 fentanyl patches I cost $400 I can't afford to pay for them. Is there a company that will supply/ship them directly to me or my dr. Office. Please help find a company that can help me.
First of all I have to say just how much I and others here truly do understand chronic pain and depression. I've lived with RSD since an auto accident for over 11yrs now, losing a career I loved and am also receiving SSDI. With SSDI I qualified for Medicare. I don't understand why you don't qualify for Medicare??
Even with other income from a structured settlement and receiving SSDI at $1057 a month (plus my settlement payments) I was able to get Medicare before I got my 1st SSDI check. Now that you no longer have any insurance you should be able to finally get Medicare and I have to ask if you have checked into it and what were you told??
There is help from both the pharmaceutical companies and even discount programs or cards for a certain medication available at many pharmacies.
Here is also a list of sources that may help you;
www.rxassist.org www.pparx.org www.needymeds.org and one is a government run organization; www.ncsl.org
I also receive Medicare Part D, which you can only apply for from November 15th through December 31st of the year. Even though I was enrolled over 4yrs ago in my late 30's, I am on AARP/United Health Care Enhanced Plan which is the only one (in this company and most) that will pay for non generic medications if you need them based on a tier level.
This year for the 1st time people on Medicare A/B can now also apply for a Medicare Advantage Plan that does cost money but pays for things that traditional Medicare does not and now they can not refuse you because of a pre-existing condition. Humana and Anthem are the 2 largest ones.
Please let us know why you weren't able to get Medicare as that could help us advise you better.
I hope the information I gave you helps also.
Due to my structured settlement I don't qualify for low income assistance on Part D of Medicare as I make more than $12,500 a year single (if married the level is $25,000 a year). They take the cost of Medicare A/B out of your social security check and if you make less than what I mentioned above, you will qualify for the low income assistance for the Part D drug plans which could eliminate any monthly charge (I pay $76.30 a month) and also keep the cost of any of your meds that are covered down to the same as Medicaid. I have to take one brand name and run into the donut hole/gap every May through the end of the year. This one medication is $569.98 a month and the only savings I get is that my pharmacy gave me a card from the drug company that saves me $70 off that price each month I'm in the donut hole and the medication only cost me $42 before I reach the gap/donut hole.
I know many people making even more than I do that have qualified for Medicare so I'm sure me and others here would like to try to help you with that as it would also help in the cost of your medications and health care.
In 2011 when anyone reaches the Medicare Part D gap/donut hole, any brand name medication will be 50% cheaper each month and even generics are going to be discounted per Obama's Health Care Bill.
Please let us try to help and my prayers are with you,
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