... these last from 2 to 2.5 hours. Short of sedition we are unable to stop the cramps. This is not the life I envisioned for him nor he did. Please any help with info would be greatly appreciated.
Just to be clear, peritoneal dialysis is where they fill the abdominal cavity with sterile fluid, leave it for a while and then drain the fluid? Is it being used to lower blood ammonia levels due to liver disease? The issue is most likely an electrolyte imbalance where Sodium or Potassium is being preferentially removed from the blood stream over the other. This would cause cramps until the kidneys get the electrolytes back into balance. Have you asked the doctor about electrolyte loss with this procedure? Or mentioned this issue? It may be that if they test electrolyte levels afterwards and find a consistent repeated imbalance that it might be possible to use an electrolyte supplement to prevent this from happening or at least ease it.
I use an osmotic laxative (Lactulose) to deal with my blood ammonia levels but his must be higher than mine or maybe Lactulose is too hard on older people (doesn't agree with me at 48).
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I would like to know if there is a support group in NYC. I started peritoneal dialysis 8 months ago?
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