... worse with time. I was an active person that now has to be carried up the stairs-wheelchair at times and terrible pain everywhere! Mostly joints. Does it ever get any better? Im on strong medication for pain and even this doesnt work for me. I also swell up alot in feet and legs-is this normal for peripheral neuropathy? This much pain is a shock to me. Doc said 100 different disease prosses cause this-so far they cant find anything else. Going to UCLA next week maybe can get some help there. Does anyone else feel like this or have these symtoms? What should I do for exersize? Sorry so long-I'm getting scared that this is gonna be my life.
hi! I can empathisize with you, as I myself have had peripheral neuropathy for over 11 yrs now. I do wonder though if that is your diagnosis, as i am an RN and your symptoms don't sound like that condition to me. I am glad that you're seeking a further opinion to that end. Please keep me posted on what they find out. If you end up w/the diagnosis of PN, I hope I can be of some help as I said, I've suffered w/it awhile.
No matter what, know that someone out there DOES care and is thinking about you! You are not alone!!
Sounds a lot lime my PN. Three months from an active physical life to near constant pain - feet burning, stabbing - and frightening loss of strength. I can barely walk because of balance problems, but mostly fatigue. Weakness keeps me from climbing stairs, and is almost at the point of putting me in a wheelchair. I cannot stand without help, even for a brief time. Gabapentin stops much of the pain, but not all. Getting to sleep is a big problem -- most nights I'm going from bed to sofa to recliner, without help. Any ideas on what to do about loss of strength and sleep problem>
I suffer from the same problem you do. i can tell you the swelling is normal. i swell badly in my legs and hands. my balance is horrible. i also was in very high does of needs that just made me fuctionable. unfortunately i lost my dr and am stuck with a pain clinic who seems to not underhand my pain and i'm barely fuctionable. keep doing what your doing don't give up. exercise take it slow. i'm allowed 10 mins a day our walk my dogs around the block if i can make it latley. seek help. the pain, killers are not suppose to be the best option but i have tried all the nerve meds. have you tried cymbalta, lyrica,, any of those?i know people that have had success with them.
good luck, god bless
Don't give up! I have it too but not as serious as you. My doc suggested nuerontin two years ago but I thought it too expensive. WRONG move! Now that I'm on it, I have great respite from pain. Before this I had been taking dillantin for seizures and it worked for that particular problem, but not for pain.I had swelling in both legs/feet before taking neurontin, but part of the problem is the fact that I sustained a broken right leg & I feel that the left leg may swell in sympathy. I also started on a vitamin called alpha lipoic acid which seemed to not only help diminish stiffness, but stopped progression of neuropathy.I take 100MG twice daily, the stuff is manufactured under the label "NOW", AND CAN BE PURCHASED AT WHOLE FOODS, or probably most drug stores GOOD LUCK! RW
Ps; I forgot to tell you that exercize (a dirty word to me), is very important. Your legs carry 40% of the circulation in your body. If at all possible, dig that old stationary bike out of the garage and use it as often as possible. This really has helped me. If not, purchase one of those portable pedals, a set that has friction adjustment. Rw
Do some walking every day, you are stiff and sore, but as others have said, once you get the muscles working you will actually feel better.
Ever have a sprained ankle? I remember tearing out the ankle playing softball. On crutches for a week, went back to the doc and he stood there with his hands on his hips as I balanced with the foot up. He said, walk on it. My feeling was it hurt way too much. He said, no it is fine, but the brain thinks it is not because you keep sending the signal that this will hurt. Walk on it, he said. I did, and low and behold it was no worse than having it without weight. By the next day I could walk almost properly. The bruising was still intense, running up my leg. He said the healing is faster if you move and that one musty be careful not to train the brain we are to unable to move. I have never forgotten that. Used it with every surgery or injury. Very true.
My neuropathy is worse if I am laying down with a little whimper in the back of my mind. Get me up and busy and I may get tired quickly but I do feel better. Let me know how this works for you. I know you are able to do it and retrain your mind. Yes, you will still hurt, but you will not be pain's victim!
What medicine did they put you on? Your symptoms sound exactly like what I am going through. The pain keeps getting worse and everything I try to pick up feels very heavy to me. I can still walk but my doctor says that it could get to the point where it will hurt too much to walk. She put me on effexor for the pain(just starting on that lyrica didn't work) so I will see if that works so I can sleep at night.
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