... thing I get from my neurologist is take these pills and come back in 6 mos. I've had this stuff for 2 years now and I'm in constant pain. I take Gabapentin 300 mg. x4 daily
My heart goes out to you, patience gone. As far as I know there IS no new research, which is a crying shame!!
You truly need to be seen by a competent Pain Management Specialist. If your neuropathy is this horrible you may need something stronger than 1200mgs of gabapentin! Ask your neuro doc for a reference, you deserve to live your life in some semblance of normalcy, out of constant pain.
Good luck and remember - the squeaky wheel gets the grease, start squeaking!
patience gone, welcome to DC! Like Lara said, you are not alone in your sufferings with neuropathy. Mine was caused by chemo, but regardless of the cause, the daily pain and suffering is the same. It seems that more PN sufferers get more relief from gabapentin than the other meds, but your doctor can try a combo of meds to give you relief. I agree with Lara that you should ask for a referral to a pain management doctor. PM doctors have more pain relieving procedures to use than other doctor have, such as nerve blocks, epidurals, neurostimulators, etc., along with meds. I wish you the best in your search for relief of your pain. We all know exactly what you are describing and empathize with you.
Just wanted to add that you are not at the maximum dose of the gabapentin and need to have a lengthy talk with the doctor. I didn't notice what has caused this pain for you. Accident, diabetes? If diabetes, be sure you stay in the strictest numbers to reduce the chance of even more damage. Higher the glucose levels the more damage that is caused. If that is not your situation, have you been to a neurologist? There may be something for you there. My feet and hands are affected. I understand your frustration. Over eight years now. From a sky high fever. Crummy problem. On the other hand I am still here. You are too. Hang in there.
Hi, patience... I understand the "gone" part... really, I do. I have been in and out of physical therapy since 1999. I now pay totally out of pocket. We always try new things if they have promise of helping, right??? I've done acupuncture, aquatherapy, neurostimulator implant, medication, walking, stretching, therapeutic massage, meditation and on we go.
I copied the following info regarding research currently being done:
"What research is being done?
The National Institute of Neurological Disorders and Stroke (NINDS), a component of the Federal government's National Institutes of Health (NIH) within the U.S. Department of Health and Human Services, has primary responsibility for research on peripheral neuropathy. Current research projects funded by the NINDS involve investigations of genetic factors associated with hereditary neuropathies, studies of biological mechanisms involved in diabetes-associated neuropathies, efforts to gain greater understanding of how the immune system contributes to peripheral nerve damage, and efforts to develop new therapies for neuropathic symptoms.Because specific genetic defects have been identified for only a fraction of the known hereditary neuropathies, the Institute sponsors studies to identify other genetic defects that may cause these conditions. Presymptomatic diagnosis may lead to therapies for preventing nerve damage before it occurs, and gene replacement therapies could be developed to prevent or reduce cumulative nerve damage.Several NINDS-funded studies are investigating some of the possible biological mechanisms responsible for the many forms of neuropathy, including the autonomic neuropathies that affect people with diabetes. The Institute also is funding studies to measure the frequency and progression rates of diabetic neuropathies, examine the effects of these disorders on quality of life, and identify factors that may put certain individuals at greater risk for developing diabetes-associated neuropathies.Scientists have found that the destructive effects of abnormal immune system activity cause many neuropathies for which a cause could not previously be identified. However, the exact biological mechanisms that lead to this nerve damage are not yet well understood. Many NINDS-sponsored studies are studying inflammatory neuropathies, both in research animals and in humans, to clarify these mechanisms so that therapeutic interventions can be developed.Neuropathic pain is a primary target of NINDS-sponsored studies aimed at developing more effective therapies for symptoms of peripheral neuropathy. Some scientists hope to identify substances that will block the brain chemicals that generate pain signals, while others are investigating the pathways by which pain signals reach the brain.Studies of neurotrophic factors represent one of the most promising areas of research aimed at finding new, more effective treatments for peripheral neuropathies. These substances, produced naturally by the body, protect neurons from injury and encourage their survival. Neurotrophic factors also help maintain normal function in mature nerve cells, and some stimulate axon regeneration. Several NINDS-sponsored studies seek to learn more about the effects of these powerful chemicals on the peripheral nervous system and may eventually lead to treatments that can reverse nerve damage and cure peripheral nerve disorders."
This medical "brief" doesn't answer all of our questions but it does let us know that something is being done... albeit at a snail's pace for those of us suffering and/or already at our wits' end. I have to choose hope for a cure because I have hope.
- Gabapentin Information for Consumers
- Gabapentin Information for Healthcare Professionals (includes dosage details)
- Side Effects of Gabapentin (detailed)
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