She has changed me to depakote ER & wants to put me on propranolol. The propranolol is for blood pressure & I already have low blood pressure so I don't think I want to take it. The depakote worries me because its an anti siesure medicine. I have had problems with meds like it before so I don't know what to do? Any advice? I wanted to add that I have started pt for my back pain I got a tens unit yesterday & I like it so far. It doesn't keep me pain free but it helps along with the meds. I saw the PA for my back the other day & I didn't like what he had to say. He told me there was nothing they could do to fix my back & that the injections are just going to do more damage. He wouldn't up my pain meds either. I have an appointment with the doc n September so I hope I get better news from him. It was so upsetting to hear that all they can do is manage my pain & like I told him their not doing a very good job of it. I guess im going to wait & talk with my doc & c where I go from here because if they wont manage my pain to where I can function then I have no use for going there anymore. How do they decide how much pain were in? They're not n our bodies to feel what we feel! What to do?
First I understand you're frustration with pain management docs. Seems like most chronic pain patients are having issues with their PM docs, I know I am.
Also, as far as Depakote is concerned, I was on it about 20 years for mood stabilization due to my wild bipolar swings. It helped until it didn't. Most anti-seizure meds can be used for other psychiatric reasons and certainly don't cause seizures. I am presently on Lamictal, another anti-seizure medication. I can't believe how much better I feel. I am on propranolol also, in small doses, it stops my palpitations due to anxiety. The beta blocker meds are used in migraine prophylaxis. So try to listen to your doc, and from now on, ask what, why, when and any side effects to the meds. That's what you are paying him for, he/she needs to respect you and answer all questions before you leave. Try to be as proactive as possible about your medical, pain and psych issues. I always forget questions, so I write a list and go and seek answers. Might I suggest you do the same? I think you will have fewer issues and fears if you approach your health care that way.
Hoping you get your problems resolved ...
Peace and calmness.
Sweet Hippie Chickie
Hi Deanne, You just received a very good answer on the meds and what they are about.
The question about how much pain and what they decide I will give some insight. First, you already know what you are feeling. When they give you the one to ten scale for pain how do you answer? I asked last time I was in the hospital to see what it really means and they said it is my personal scale and how I grade myself. Not their scale. It actually helped me to know. That way I can let them know if it is increasing or changing somehow.
Second. They start low with pain relief because pain changes, our bodies change. A med works for a while then we change. New med is used. Also they may be constrained by your insurance. Protocols are setup where A is used and if it fails you go to B. it is as frustrating to the doc as you. Physicians and nurses want you better. It can't always work directly as they want. Sure, you continue to hurt, they don't. But that is not logical. Blaming does nothing, right? It is your pain they want to help. You have what you have.
Third. Not going back is silly. True some docs are better than others. With the doc you have a chance. At home, well you already know what that is and you don't sound happy.
Fourth. Pain free? No such thing. You had that probably when you were six. Even without a condition, we all end up with aches and pains as we age. Or if we don't sleep or exercise. We ache if we are too heavy or if we have allergies. We ache with depression which is the twin sister of pain. Expectations need to be based on what our doctors tell us and what we are able to tolerate.
So, Deanne, that is my primer on pain. As I have told others what my teacher told me: one gets one minute to throw a tantrum and then one is done. Whining changes nothing. I am a very good whiner so I can attest to the fact that nothing changes. Not really saying you are a whiner as much as saying that dwelling on a situation makes things worse. Staying busy and focused on others is what helps. What can you do? You may feel overwhelmed and that is stress. There is a way out. Wishing you that soon. Karen
You have to have a little respect for the fact that your doctor has had an extensive education, he's not just experimenting on you. These medications have valid uses in pain management. The answer isn't always take more opiates. Believe me, in this day and age the docs are going to use everything in their power to avoid them, as they are getting into legal problems by treating us.
Hi, if you are worried can you seek a second opinion from a different doctor? You have had some very good advice here, but maybe a second opinion as well would help? I have taken Propranolol in the past and i also have low blood pressure (always have), and i didn't have any problems with it. I was more careful about standing up quickly and such, but it was beneficial for me. Maybe this will put your mind at rest a little?
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