I have carcinoid cancer (NETs) in my liver, stomach and bone metastasis. I am on monthly Lanreotide 60ml Autogel injections and I have just started on Afinitor - Everolimus 10mg tablets on a daily basis. It's my 3rd day on this Everolimus treatment and so far I have been okay, but I would like to hear from other people's experiences of being on the same treatment and how they have coped on daily basis and if there is anything to watch out for whilst under this medication. I am based in the UK and any advice would be more than appreciated,
Hi I have had liver and bowel chopped and dormant looking pancreas bits but have metastesses ... In my spine . I have been on octreatide for 8 months and I'm feeling ok no real side effects but hot flushes. Not sure if its carcinoid tumors occtreatide or menopause ... I'm 50 I also have developed pain in my shoulder but I have serious denial issues ... lol How are u feeling ?
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