I am headed to UCSF for test to see if they can figure out what's going on? Wish me luck, as I need relief and answers having this 24/7 non stop pain for the last 2 yrs is bringing me down to where I dnt want to be.
Hi, I don't know where or if you have periphial neuropathy. I went to a specialist because it's in my legs and feet. I went the first week of Feb 2012, and the doctor told me not to use cold packs, because they aren't cold enough, but use ice packs. I get the cooler chest freezer packs in Walmart's hunting/sport department, and then I take them out of the freezer and wrap around each leg for 15 minutes -4 x a day. I'm almost burning-creepy crawling-going mad free. I get tingles and I get flare ups. I also move the packs around, so it's massaging the area- I wear cargo pants and socks-so it's not on the bare skin. Even with bare legs, I find bath towels too thick. I began noticing a great improvement in my life after 6 weeks of doing this. Before I began this, I wanted my feet amputated above the ankles- sometimes the neuropathy went into the small of my back. For some reason, when I had it really bad, I got sick to my stomach and got really sick to my stomach. I hope that this helps you.
Do any of you with this neuropathy have ever taken/take a statin drug? This is a major side affect of the statins although it can be a problem also without the drug, I am sure. A friend of mine developed neuropathy in his foot after taking Lipitor and never got better even though he went off of it... doesn't happen to everyone but some of us are more sensitive to drugs than others may be.
Just a thought.
Thank you eveyone! :) I am back from UCSF. Had all sorts of test done, now before the neurologist calls me back I need to get my muscle biopsy from UCLA and have them fax it to UCSF. Back in 2008 my urine was also black, because my ck's were at 7,000 and normal ck for the average person is 100-150. My right foot is messed up and I'm wondering if its my tendons from taking statins back in 2007. Any way thank you again for the answers and feed back ... pamee
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