... suffering from a very painful rare skin condition for 12 years now. Three years ago my doctor put me on lortabs for pain and they worked however my condition got worse along with the pain and surgery was needed on my groin to prevent me from being bed ridden for the rest of my life. Was on lotabs after surgery but it was such a relief to have all the infected glands gone that I didnt need to be on it for long. Well last year it came back in my left arm pit. At first it wasn't bad but got worse really fast.My skin doctor put me on lortabs again and would up the dose as it got worse. I knew it was highly addictive so did not take them everyday but It got to the point I could hardly do anything with my left arm and surgery was needed. Less then a month ago my surgeon ,who did my last surgery, operated on me agian. He took off my skin, the infections and glands. He also did the same thing to the right armpit as a preventive. He removed skin from both legs for skin graphs. This time around the after surgery pain has been worse then the first surgery pain. So the surgeon gave me a 5 day script for lortabs butI was still in pain afterwards. I asked for another script. This is where he started making me feel guily about still being in pain. He compared my surgery to the last surgery and that I did so well with that surgery so why not this one?? He also treated me like an addict for being on it even before my surgery. Just made me feel so bad. The pain in my right arm increased and he couldnt undertand it because all the graphs took. The nurse was very symathetic and told me because my left arm was cut so deep that the nerves were damaged and wasnt like that in my right arm. Last week was my last appointment with my surgeon and told him the pain wasnt going away. I was getting maybe 2-3 hours relief then pain agian. Also started taking more things like ibprophin to cut down on the lortabs. Told him this and asked if my dosage could be uped to tens so I could have a stronger dose and would take less of them. He was not for that but gave me another script for 7.5s for another 5 days!! He also told me to start moving more which caused me more pain especially this weekend. Basically my arm pits are RAW MEAT!! Then on early Monday morning my son had a seizure and had to be taken to the hospital. Very stressful and a hard, tough night. Not to mention when he came out of the seziure he was kicking us and ended up kicking me everywhere including my shoulders and legs. Needless to say in so much pain due to the high emotion and the kicks. I had hardly any lortabs left and to be honest afraid to call my surgeon. So I decided to call my skin doctor who still going to be treating me and left a message for the nurse. Needless to say nothing was prescribed and I was in intense pain. My pain level yesterday afternoon was at a 10. I was crying because I was in so much pain. I kept calling my skin doctor but never got a call back and nothing was called in. Finally I called my surgeon's office and was informed that they were all in surgery and not even the nurse was there so I continued to try to contact my skin doctor. Finally in so much pain I called and refused to get off the phone until I talked to the nurse. The nurse finally came on and had my surgeon's receptionist on the other phone. She said that my skin doctor felt that my surgeon should prescribe the meds for my surgery which I understood. She said that the recepionist for my surgeon said that she would make sure that I would get my pain meds. Well this morning still without pain meds, I called my surgeon. The receptionist said that he refused this morning to refill it and is sending me to a pain management doctor. I understand this may be a very good thing but I feel I have been treated like a child. The receptionist said she would let me know when my appointment was with this new doctor. Well by 4:30 I still havent heard. So I called back and they said they still did not have an appoinmtment for me. This caused me major anxiety which made my pain worse again. I told her I didn't have anything while I waited for this doctor. I was also now taking care of a sick child and soon going to have to start back to work which is going to be demanding as well. I asked to speak to the nurse, she refused to let me speak to her and told me that he wasn't going to refill my prescription at all in not a nice tone. I asked her if he could at least give me a lower dose while I waited. I was rudely told no again. It is now after 10 pm and have no idea when I will see this pain medicine doctor. I have been taking over the counter meds to help with the pain but only lasts a short time. I have been suffering from this for 12 years. I know my body and should be able to have a say in my management. I'm I wrong? I kinda wonder if I am being punished because this time around I didnt go through him. My questions are: do I have a right to be upset with this surgeon for thinking I shouldnt be in pain anymore. Friends still look at my arm pits and cringe!!! Second question should I contact my skin doctor to let him know that I wasn't helped. Third and last: If my surgeon refers me to this other doctor is this other doctor going to believe my surgeon if he has said anything misleading.I do also want to end this by saying I do not feel I am addicted. It is very real pain I am feeling!! Thank you to those who answer. Sorry for being so long winded
Oh hon, I hate that you're suffering like that and be treated that way. I don't think its you at all. The doctors have had more pressure put on them by the DEA not to order narcotics of any kind. The pain management dr is your best choice I think. He understands that people have pain. Somehow this country has gotten the idea that only short term pain can be treated. A pain management dr will use other things besides narcotics too. There are other things, like meds for nerve pain that may help. Surgeons are geared to "fixing" you. Some don't seem to understand they can't fix it all. I'd put my money on the pm dr. Can I ask what it is you have?
This is really crappy to say the least and it is a shame people are being treated this way. If people dont start complaining to the politicians backing this kind of crap, it is going to get a lot worse. This is due to pain politics and the DEA mainly. You wont be able to get anything more out of your surgeon or your skin doc. You will need to go to pain management. The DEA is cracking down so hard on all docs that it is just getting ridiculous! There is even a petition going to the FDA to change labeling on pain medications.
Right now many medications say "for moderate to severe pain" they want to scratch the word "moderate" so opioid drugs are indicated "for severe pain only" plus they want to limit the dose to the equivilency of 100mg of morphine per day AND they want to limit treatment to 12 weeks ONLY! It looks like some docs are jumping onto this already. Many Drs want to use any excuse they can, already, to rid themselves of pain patients. Oh, they dont mind writing 1-2 scripts for pain pills after surgery but beyond that they start getting worried. The DEA has the power to come in and seize all of their assets, (their bank account, retirement, everything) if they think that the practitioner is overprescribing opioid medications. No doc wants even one DEA eyeball on them, and really, can you blame them? Most primary docs, family practitioners etc. refer you to pain management to take that weight off their shoulders. As a "Pain specialist" pain management is given a little more leaway, for now, but if the polititions and these few docs who belong to PROP (Physicians for Responsible Opioid Prescribing) have their way, chronic pain management with opioids in non-cancer pain will be a thing of the past!! Many of the docs in PROP were the same ones who were involved in getting state laws changed in Washington State to the severe restrictions they impose on opioid prescribing there now. These docs are using flawed evidence to push their agenda through to non medical people who dont know any better. Most of the opponents of PROP know that the data they are using to push this is flawed, but it will come down to who is the most aggressive in getting it done and PROP is very aggressive-just ask anyone in pain in Washington State!! Enough of my political spiel!
Your best hope is pain management. they should have no problem, right now, in continuing your pain medication as it is. You are now becoming chronic in nature and that is what going to a pain specialist is for, chronic pain conditions. Once you get to the pain doctor you should have no problems getting your meds for now. As for what the future holds??? People need to take initiative and let your politicians know how these restrictive laws and efforts by the DEA and others affect you as a legit pain patient. They seem to think that by restricting access to opioids to everyone, they can get drugs off the streets. We all know that this is oxymoronic and is only going to hurt the people who are already hurting! It will only affect the access to pain patients NOT people who are obtaining their meds from the street. In fact, they will be pretty much pushing EVERYONE to the streets to get any kind of relief!
Hi jordy - I don't know what kind of insurance you have but I wouldn't wait for the doctor's office to find you a pain management doctor; I would be looking for one ob my own, if I were you. It can take a while to find a doctor and get an appointment, too. Also, OF COURSE YOU HAVE A RIGHT TO BE UPSET!!! Goodness, gracious SAKES ALIVE! I feel bad for you... and the description of your symptoms have given me the "visuals" quite well. Skin grafts are painful too let alone the reason you had to have all of this done. Surgeons don't prescribe pain meds any more for chronic pain management. I don't know what kind of condition you have but if it is one that is now under control but has left you with nerve damage from the invasive surgery, any pain management doctor would understand that. A pain management doctor who is an anesthesiologist would be your best bet.
A physiatrist (not sure of the spelling on that one) who is a PM doctor probably isn't the way to go; they are geared toward physical medicine or sports related injuries and medicine. How are you doing at the moment? With all of this going on... being angry and frustrated can make matters worse. I know it is easy for me to say that because I am not you but I can relate to how it feels to not be believed. It doesn't matter what your surgeon thinks and what your surgeon says... please take matters into your own hands and do what you can, for your own sake and peace of mind.
I wish you well and hope you will keep us informed about your progress. We are here to support you and want nothing but the best care for you. Let us know how you are doing so that we can offer you our insight and support, okay?
Jordy that is horrible and uncalled for that those doctors treated you like that. You have reason to be upset. We as patients need to be our own advocate, but when you have to deal with doctor's like that it is hard to do. You need to find a new doctor. You most surely need to get a pain magmt doc. PM docs seem to understand your pain issues better. I wish you the best and hope you find relief soon.
God bless... pamee
I can't believe that the entire office is so rude to you too. This state is having a big surge of morphine users and ODs. The reason so few doctors prescribe pain killers is the DEA, which makes meds costs more. Here they consider chiropractors as pain management clinics.
Your problems sound so agonizing. My skin hurts reading your letter. You have my prayers.
Hello Jordy. I have read all the good advice and wishes for you. I know it sounds tough to search when you are so exhausted from your child's condition as well as your own. do you have anyone who could help you make a phone call or two and find that pain clinic and a new physician?
When I get caught like you are I start asking for help from a good friend. Just that little bit helps me feel better. I hope that you are able to do the same and take a touch of pressure off your situation. You deserve it. Very sorry for your pain and suffering. Don't forget, if it gets too hard to handle, the hospital may be your best bet. You have spent plenty of time there, perhaps the help, meds and rest will benefit you when it is not surgery and recovery. Wishing you a solution coming soon. Blessings to you, Karen
THANK YOU ALL SO MUCH FOR YOUR RESPONSES!!! I finally got a hold of the pm doctor and they can't even schedule me yet. They even said it was going to be awhile. I actually started to get depressed which caused even more pain. Finally my cousin suggested I call the doctor that delievered my babies. I had favor with him!!! Told him on the phone everything that was happening. He immediately prescribed me Norco and seeing him on Monday. He is going to take care of my pain until I can see this pm doctor. I am so grateful to him. And I am also grateful to all of you. I was starting to think I was just going crazy. I am so glad I found this site and that I am not alone. I will continue to keep everyone posted,
Yes, it's all terrible. And unfortunately it can easily take months to get an appointment with a pain management doctor. Over 3 and half years ago, it took 5 months to see my pain management doctor after the clinic took almost a month to approve my main doctor's recommendation that I get the appointment at that clinic.
Now, it takes a full year to get an appointment with the same neurologist that I see. Maybe a shorter length of time to see one of the other pain doctors--don't know. I have to make my appointments many months in advance since I need them every 4 weeks.
I went to the pain management doctor and they have made me feel like a common criminal because I have pain. I am 67 and if anything kills me it is going to be the stress my body, mind and soul go through because I wake up in pain and go to sleep in pain. I am sick of it and I am so tired. I have RA, around 14 bulged disks, degenerative disk disease, fibromyalgia, hit by hit and run driver while on my bike on October 16, 2010., going 45 to 55 mph. And they treat me like I am dirty for not wanting to hurt anymore. I am so very, very tired. I have survived a lot, had children natural childbirth but I am tired of begging for help and then being treated like I am mental and trust me I am depressed and do take Prozac but that doesn't stop the pain. I feel like I am going to lose my mind or maybe just wish I could. It is taking the years I may have left and making my life miserable.
I didn't go to the doctor for most of the 2 years after I got hit beause I just didn't want to go through this. I hate the way my life is now. I live alone and it is hard to even take care of myself sometimes.
you have the right to get relief from your pain and every surgery is different and so is the pain!i have had over 20 surgeries and have had some where i can handle the pain and others where i can't but i have been lucky to have great doctors!i too am a chronic pain suffer and go to a pm doctor .and yes somethines i feel as though i'm looked down on because i take pain pills but i need them to get through my day!i have fibromalgia too and this is no fun!i am glad you are getting some help now!i don't under stand why doctors make us feel like scum because we hurt and need meds to help!i thought that was why they are there is to help us !!! and i know that our country thinks we are all pill heads and thats why they are making it hard for us to get our meds!but let them be in pain like some of us are and they would change the laws !of course they have the money to get what they need !
I've got the solution to this pain management problem. There is a certain percentage of suicides from chronic pain. If someone has documented the doctor not giving pain medicine, then if their relative commits suicide--file a lawsuit against the bastard. That would be a good incentive for all doctors.
Get copies of all patient records as you go. Have someone else go with the patient to the doctor appointment where they refuse to issue the medication as a witness. Get it tape recorded--secretly of course as the doctor will probably not let you do it.
Yes, many people do commit suicide from the pain. So paln ahead--just in case.
When I went to my main doctor's office crying the entire time from the beginning to the end. I told the doctor that I couldn't stand my life as it was. This was while I was being treated by 3 other neurologists with pain treatments and medications. But my main doctor took it seriously. She had me come for appointments every week, when normally my appointments were months apart. She upped my anti-depressant, one which also treats physical pain.
Later she told me that she thought the pain had finally gotten to me. Then I read about the suicides in people with chronic pain. She really thought I was suicidal even though I told her I wasn't.
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