I am a 34 female and i have PKD (polycystic kidney disease) and my belly has actually grown large enough in the last 6 months that people actually think I'm pregnant. I have been on Percocet 10-325 for about 5 years. It has worked very well except the last few months. Even my monthly cycle's seem to be getting my intense (cramps, bloating... ). I have mentioned to my pain management doc that the pain is increasing but she hasn't asked me or said anything about changing my meds. My condition isn't like a normal pain. My problems are internal so they can't be treated with injections or stuff like that. We have tried. I'm just at a point where all I do is laying bed because I can't take the pain. (Have had to go to ER a few times because of the pain) I do go to work but I am constantly having to get up and move but not to much because the standing makes it worse. I have trouble playing with my young girls because all I can do is "rest". I am hoping someone can have a solution so I can get my normal life back.
Hi! I just joined and noticed your question. I have chronic severe PKD pain as well. I am on the same meds having the same problem. They just don't seem to work as well anymore. I don't know why we have the pain either but i do know i feel very alone with the pain because nobody but my daughter who has PKD understands. I was lucky to get a medical retirement. I have no idea how you can work! Anyway thank you so much for letting me know I'm not alone and lets hope something comes along to give us a break.
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