I have been diagnosed for over 12 years and it causes pain unlike anything I have ever experienced. It is by far the worst pain issue I have, and I have alot of things going on. The pain has been described as worse than cancer pain, which I have thankfully not experienced.

I am sending out a plea because I am being treated by a pain management doctor and currently take MS Contin at 60mg twice daily, soma as needed and I am lucky to have a long standing rx for lorazepam, which I can put under my tongue when I am near to collapsing fro the pain. I am going to finally switch to Opana ER next month, and I'm hoping it provides more relief, as my doctor does not want to increase the morphine dose.

Please help if you can! Many thanks and blessings to all... Beth