I asked to get off OxyContin in December, 2011. I finally did it Monday. The Pain now is terrible but I can distinguish where it is.
Was the contin working for you? Have you considered the Immediate Release version? I know for me, after a while the continuous release seems less effective. With the IR I can feel it kick in shortly after taking it, thereby being much more effective. Just a suggestion, hope it helps.
Congratulations for getting yourself off of OxyContin. I got myself off that one too though I am still on pain killers... they just don't have the awful side effects I was experiencing on OxyContin.
What has your rheumatologist recommended for you? If you don't have one, I would point you in that direction. I don't know what other health concerns you might be dealing with.
I am on Oxycodone 15mg every 4 hours for pain plus a Fentanyl patch 100mcg. There is lots of things that can be tried but I would recommend that you try a rheumatologist, if you don't have one.
I can tell you that I find walking in a heated pool quite therapeutic. I also get a lot of relief from "hanging" in the pool. You might check around your area to see if there is a group that does aquatherapy or hydrotherapy in your area. Do you have a "community center" in your area or a YMCA or an assisted living center that has in-house therapy??? These are just some suggestions for where to look for a heated pool and help.
Massage therapy can also help relief the stress you must be feeling right now, too. Gentle yoga or mild stretching exercises after showering can also help. Heating pads can give relief and so can the col-pacs used for cold application to the affected areas. I use all of these methods except for the yoga because I cannot do any stretching or bend like a pretzel.
I wish you well and keep us posted if you need additional support. I would personally love to know what your doctor recommends to you.
If you don't want to take narcotics, there is naprosyn, and celebrex, and medication similar to that, It really sucks being dependent on pain killers, but if you needed an opiate to help relieve, I would say Roxicodone 30 mg, it is one of the best pain killers, i have ever taken, it's not as strong as Oxycontin, but stronger than Percocet, that's basically what it is a higher dosage of Percocet with out the Tylenol. Good Luck:).
I applaud your perseverance and strength. But, here comes a little information. While you were on narcotics, the mu receptors in your brain that the opiates bind with, relieving pain, have multiplied. You have a whole bunch of them, now, that are screaming for opiates. I know it's awful, the pain seems worse like every nerve you have is hurting. The only thing that will make that go away is more opiates. For instance, I very slowly tapered off of oxycodone, 60+ a day. Hooray. Then a week later, I fell down a flight of stairs, fractured mu humerus and shredded every tendon. The pain was excruciating. I managed to get a hold of 120 10 mg Norco, prescribed just not filled, and went thru them in less than a week, the determining factor being I wouldn't take over 4 grams of acetaminophen a day. Since I had been on oxycodone, the hydrocodone didn't you j my pain even if I took 4 pills at a time. I tried every non-narcotic pill made, nothing. That's my story. My body is falling apart and will be on pain meds for the rest of my life.
The reason I told you may latest traumatic injury, that made all my issues worse than before is to explain how much pain your brain is going to make you suffer.
My suggestion to you would be to find an anaesthesiologist that is a PM doc also. I go to one and he also is an interventional PM doc. First thing he said to me is how can I help you. He is wonderful. I am on morphine now, low dose initially, just the doc being safe. My pain is bad, no wd's and will see the doc in two weeks and will up the dose or change meds. I can't give up narcotics. My pain is too much.
I have at one time or another been on hydromorphone or dilaudid, oxycontin, oxycodone, hydrocodone, Suboxone and Fentanyl with bt meds. Do I wish I didn't have to take these meds, yes. Can I stop them, no. It's like having any other chronic disease. My husband bad type 1 diabetes, takes insulin 4 times a day. Our disease is no different.
So if you need pain meds to live a semi- normal life, so be it. You have a lot of medications that can help you.
If you try and try again, you will find the right combo for you and be able to go walking of into the sunset, almost painfree. That I'd my hope for you.
Sorry for rambling ...
Peace and happy days,
Hello 123... My sister has RA and Osteo. She has run the route with pain meds. She is in her fifties. Her condition is rapidly advancing. Her pain management doctor has found a way to help her. First, she attends the classes, has learned meditation, and exercises. She has a special trainer who specializes in disease process and they stabilized her core muscles, helped her shed thirty pounds and build enough strength that she has reduced the pain in her back. They moved her off opiates and she is taking tramadol. Recently a burst of prednisone is being added before she starts retuxin.
This is a tough disease. Keep moving is the key. The second you give up on walking and start sitting around, you will pay for the inactivity many times over. It is not easy, but the alternative is certain and agony is not her choice. Imarian55 is right about opiates and how they make us hyper sensitive to,pain. Long term diseases are guaranteed to do that. I really feel like I can be smarter than drugs. I know pain won't go away, but it can be managed.
Stay as positive as you can. People are finding solutions. Pills don't solve our problems. All they do is get us through or make new problems. Pick and choose. Stay with a really good doctor. And believe you can make good changes no matter what stands in your way. You sound strong, I offer these words to keep you going and thinking about your situation as a bump in the road. Keep at it. Karen
- OxyContin Information for Consumers
- OxyContin Information for Healthcare Professionals (includes dosage details)
- Side Effects of OxyContin (detailed)
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