Will it get any better over time I can't work my job anymore for the pain of both the COPD and the fibromyalgia
Hi, have you had a review with your doctor recently, to discuss how you are doing and to discuss medication/s? If not, this would be a good idea... you could raise the question, is your current combination medication the best for you as an individual & is there is anything else that can be done to improve your quality of life?
Hello. So sorry you are dealing with these conditions. Fibro hurts and there are quite a few here who can relate. COPD treatments are effective as long as you don't smoke. Neither are curable but both are treatable. Fibro requires staying active and pain control. COPD requires vigilance with taking daily medications. Have you attended a Respiratory Therapy Program? This will help considerably in understanding and managing the disease. There is a lot of benefit in the program.
Fibro affects nerves. If your body does not get as much oxygen as it needs your pain will be higher as the body works harder to get oxygen to the brain and internal organs. That is a drain of energy and creates strong fatigue. Keeping the body active and not being a couch potato improves both. This takes determination but will help. If you need oxygen, do it! The lungs are the focus, because if they are not well treated they will be your downfall, not the pain. I suggest you see your pulmonologist and have the doctor develop a program for you if you don't have one. The lungs can change without an apparent reason and you ought to have regular appointments whenever you suspect you are too tired or getting breathless when speaking or any activity. Pain clinics help with the fibro. Your doctor will guide you.
Your doctor will also discuss if you are at a point of filing for disability. Stay in touch. Wishing you rest, healing and solutions. Karen
Don't know about your COPD, but, Fibromyalgia, in my experiences is a dumping place for unexplained pain that goes on and on and Drs can't find a reason for it. If joints and muscles are painful (Main complaints of Fibro) then I wouldn't think it would just go away with out treating underlying problem. I, too, have been diagnosed since 2008 and stopped the Lyrica that was 1st prescribed, when my face and lips were so swollen my pharmacist said could next affect my throat and possibly affect breathing. Next was Neuronton, also prescribed for seizures and migraines. I took it for 3 months and stopped. Realized it made no difference to me, so I rely on pain meds for other things. Its tuff, getting down to the root of a problem is so hard. So many drs treat everyone as text book case. That, I am not. Massage and stretching help me alot. Does not take pain away, but, helps it not go that next untolerable level. If given the chance, Lyrica or Neuronton might work for you. They just didn't work for me. Take care, be well as can be...
Hello Bobbysr, I've had fibro for 25 yrs and do not have COPD. I was very lucky in that the MD I had 25 yrs ago correctly diagnosed the FMS and I didn't have to see multiple MDs as so many with FMS have had to do. Initially, I had many periods of time when the fibro was in remission and I sometimes thought "I don't have this disease." But then it would come back with a vengeance. In the last decade the fibro has not been very quiet, but I have discovered that exercise - for me walking 1-2 miles a day- actually does help. Sometimes its so hard to do and I don't know if your COPD
allows you to walk, if not, try yoga. If you can take some of the newer fibro meds, some actually do work so don't give up. I also had difficulty getting to work daily and recently (after a bout of cancer) retired from my job. Not having to get to work has helped decrease stress lessening the fibro pain. Ask your MD what you can take along with your COPD meds and keep trying. Good luck. Meditation and faith also help. BRuthD
I would think that your oxygen levels, if they are lowered, might impact your fibromyalgia pain. Low oxygen can affect pain quite significantly.
I hope your Rheumatologist takes this into account when prescribing pain meds for you. But it's a fine line as some pain meds (opioids) can affect breathing, so this will be so difficult to treat.
Some fibromyalgia sufferers do heal and no longer have symptoms, so it is possible that the pain will cease. We must all keep hope alive, that someday our pain will vanish.
Best wishes to you Bobby,
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