I have Fibromyalgia and suspect restless legs syndrome but not diagnosed with it yet. I generally don't have trouble falling asleep or getting enough sleep. ( usually 7-10hrs a night) My absolute biggest problem is I wake up every morning EXHAUSTED. I believe they call it unrefreshing sleep. Sometimes I remember waking a few times in the night sometimes I don't but I've read that's likely the cause. I'm am starting to think this is the biggest contributing factor to my Fibromyalgia. I started having sleep problems 6 years ago and guys I'm done. I want a decent night of sleep and I'm willing to do about anything to get it. So please tell me what has worked for you? Changed your life even? I've got twin toddlers who deserve a mom who is happy, alert and not in constant pain. So I'm done wallowing in this awful syndrome and ready to start asking hard questions and making lasting changes to my entire lifestyle to feel the best I can. But first things first, I want to tackle this sleeping problem. So any recommendations are greatly appreciated
I recommend going to a sleep specialist and having a sleep study done. They are painless and will diagnose your sleep problems including anything like restless leg syndrome to sleep apnea. I have had one done and while it was strange being hooked up to the monitors and sleeping over night at the facility, it really was a quite simple process. Once the doctor knows what is causing the problem, there are numerous avenues to persue for improving your quality of sleep. I think once you get a better nights sleep you'll find the tiredness not only is alleviated but also will help the fibromyalgia.
Hi, excellent suggestion from Laurie. I'm writing just in case you live in an area where the sleep clinics do not exist, like me. I had pain related sleep disturbance when i injured my back. Like you, i could fall asleep but would wake several time during the night. My doctor prescribed Amitriptyline, and they work great! I started off at a low dose, and they weren't amazingly effective, but now i take 50mg each evening. They are primarily an anti-depressant/anxiety med, but have pain reducing and sleep inducing properties. You may need to allow a period of a few weeks to get maximum benefits, but it's worth it.
I'm with Laurie on this one. I have tried everything out there to get the correct sleep & they all work for awhile, but then my body gets used to them or they don't let you get the REM stage of sleep. I have been taking xanax since 1994, & I sleep alright. First, laying down is the only thing that alleviates my back pain (usually), but the xanax keeps me asleep all night long. The problem is it doesnt help with the fibromyalgia. Everyone is different & reacts differently to each & every drug. That's is my reasoning that you do a sleep study also. I don't think there is a single pill out there that can be a majic potion for us fibro sufferers...
I've struggled with sleeping meds for YEARS. I was diagnosed, unbeknownst to me with RLS. It dawned on me, after learning about side effects from medications and how various meds work with one another, that when my body is so medicated out during the night, I wake up with legs moving like I am in a race and my body tossing and turning. I figured out that happens for my poor brain tries to get my body to wake up in order to go pee! I have been cutting back on taking FOUR medications that suppress the nervous system and without being so dopey at night, is when I realized if I was in control of my body while sleeping I would kick all over to wake me up to pee. I go through this two or three times a night. least it is taking less time and I dont do the RLS that much! Julie
Hi redhdbk, I was diagnosed with Fibro 2 yrs ago. I never really slept very good for as long as I can remember. My Doc said the studies cant decide whether you cant sleep because of the Fibro or the Fibro is worse because you cant sleep. Kind of which is to blame thing. Good luck and keep searching.
I was dx with fibromyalgia 4yrs ago and was put on some pretty strong pain meds. I had trouble sleeping during the night and excessive daytime sleepiness. I had a sleep study done and they figured out I had narcolepsy but it could be due to all the meds I was taking. Recently, my sleep doctor tried xyrem and at first I thought I was going to go crazy bc it gave me severe paranoia and anxiety which I didn't have before taking it. I discontinued the xyrem after 3 days. Then I found a new PCP who figured out a lot of my pain was due to my pain meds. I slowly tapered down off the pain meds and discontinued my other meds I took for sleep. It took about 3 weeks to get through the med withdrawals. Then I tried xyrem again and it worked great. It takes a few weeks to adjust to the right dose, but it's well worth it. My pain is better and I get my deep sleep. You will have to find a sleep specialist that can prescribe this medication bc only one pharmacy dispenses it.
It's also expensive. I'm on Medicare and I still have to pay $500 for a months supply. Good luck. I know exactly how you feel.
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