Has anyone taken Octreotide for MINETRIER'S Disease? If so, please respond. My son has been diagnosed with this rare blood disease and needs info on availability of drug, cost, etc. Octretide is preventing his disease from progressing, however, the cost and availability in Mobile, Alabama is a major concern from month to month. The medication from different manufactures causes a reaction. The drug from Mylan seems to work the best, without the side effects. The cost is also a major concern with a very limited amount paid by Insurance.