I'm very weak, still tired & having muscle aches especially in my legs. It's constant pain. Anyone advice? Or someone with same problems?
Check with your doctor, but Provigil is not an amphetamine as I understand it; therefore, I believe it's much safer for you to take.It's expensive if you don't have insurance though and I take 400 mg a day. However it's the only medication which has stopped the worst of my symptoms surrounding Narcolepsy, and it is Xyrem.
I no longer fall asleep for five seconds while driving; or after taking a bite of food, where I wake up four minutes later with food in my mouth. Food which I never even chewed, and I would be afraid that I could of chocked to death. I don't fall asleep 15 times during a movie which I want to see very badly. One hour of sleep while using Xyrem feels like 2.5 hours of sleep before I took it.
Everyone is different and what worked for me may or may not work for you. For me its been a miracle drug. Good luck with whatever you decide to do, I believe in exploring as many ways to try live somewhat normally as possible. I also have chronic pain. I can't take any morphine though within 11 to 12 hours of taking Xyrem, though there are short acting narcotics that can be taken as long as your system is mostly clear of them by sleep time. The deep sleep makes you forget about the pain for the most part. Then in the morning its worth it to me to tolerate more pain initially until my pain meds start taking effect.
I take all these medications and yet I have very good motor reflex response and I have a 3.7 GPA at a University. So it's very important to have good and sensible doctors who care and to develop a relationship with them.
I was diagnosed with Narcolepsy when I was 15 years old and am now almost 18. I started to notice constant, non stop pain around my sophomore year in high school, which is about 2 years ago. I still today have the same constant, non stop, and miserable never ending pain throughout my entire body. I was also diagnosed with fibromyalgia nueropathy just a few months after being diagnosed with Narcolepsy along with having severe depression starting when I was diagnosed with Narcolepsy. Fibromyalgia is known to be pretty painful but I have not yet been able to find a medication to help my constant pain finally stop. My doctor has prescribed many different medicines over the past 2 in a half Ish years that havent helped me, my depression, my fibromyalgia, my narcolepsy, or my pain. So if I think you should be checked for any kind of nueropathy! Hope you have better luck feeling better sooner!:)
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