Just wanted to let you all know, I'm as happy as a bedbug :) ... I've been looking high & low for something would help with the pain in my leg and foot from 5yrs of RSD/CRPS. Well, I think I've found it :D ... I've been due for a vacation for a while now... to make a long story short; I settled on Tobago, West Indies a small Island out in the Caribbean. I went for the month of April and I must tell you the first few days of jet lag etc pain levels were usual. After 4-5 days of lying in the sun & being 85 degrees of consistent heat, the pain was starting to feel better so much that I was able to cut back on my medication. Second week of being there my pain was at about a 2, never in the past 5 years has it been that low :) ... by this time I was walking every where, third week I was down to medication at night time only at that was because of the ceiling fan and air conditioning in my room. I actually was able to have rum punch ( a few ) ;) ... without having to worry about mixing my meds with alcohol. I was feeling fantastic, staying up late, partying with the locals and new friends I had met from other parts of the world. The last week I was there I noticed the pills in my many bottles had hardly been touched, miracle! not sure, but this I know ... the consistent temperatures of 85 degrees was the answer. Since I've come back, good old Ontario weather being as inconsistent as it is, 75 one day and 60 the next, in the summer, the pain came back, the pills in the bottles started to go down and now I'm back at my regular doses. We are now preparing to travel down there for the winter months, my husband saw the change in me when I came home and was delighted, the other thing that was strange, my period had vanished for the past 4 years, 4 days after I arrived in the Caribbean it re-appeared like it had never been gone in the first place. Coincidence, not sure, all's I know is that I felt 150% better down there.
Has anyone else had this experience before? ... I'd love to know whether the heat in tropical places affects your pain levels. If I told my Pain Specialist, I'm not sure he'd believe me, bless his heart he's a great Dr' but we all know they are trained to diagnose and prescribe :( ...
Love & Light everyone
Not a question, so much as an answer to pain?
Wow that is wonderful! And obviously not something you would have discovered without your journey. I know that cold affects a lot of chronic pain situations. My fibro, for sure. The last few days the pool where I do my water aerobics has been very cold due to a heater mishap and I have had miserable nights.
Sadly I think many people with illnesses that would benefit from living in tropical climes can't afford to do so. I myself feel so good in the ocean in Hawaii I long for being able to live there. You are a fortunate woman with a lovely understanding husband and it made me smile and start my day happy to hear your story.
That is awesome! I'm glad you get to go back this winter. Cold weather definitely causes pain to be worse. And rain! I always know when it's going to rain because me neck will start hurting and I'll have an awful headache that I can't get rid of. You may also have had an extra good dose of vitamin D while you were out in the sun. Lack of vit D can cause fatigue which leads to depression, etc. Also, I'm sure you were pretty much stress free. The less the stress the better you felt, I'm sure. My mother has fibro and I keep telling her we should all move to Arizona. I know lots of people who do that and it really helps their pain. Why do you think so many people retire in Florida? :)
Good luck on your trip back! I'm very happy for you!
Hi tradergirl64; I've been told by people [company] who're supposed to know what they're talking about, that Vitamin D in pill form can be safely consumed, at up to 100,000 I.U. I personally think that's crazy, but "Hey" whatt'a I know! What I KNOW, is that I hurt, and that I need, but cannot get, pain help so-o-o-o i'm up to 6000 I.U. so far and still alive.
You are absolutely right about how climate and weather plays a huge role in our pain levels. When you go to a place that is a warmer climate or out west where there is NO humidity hardly, your pain levels go down and you can do more physically with less pain.
Also if you are on a vacation in a place like this, endorphins rise and that is a huge reason for better pain control and being able to take less pain medication. Your mind state changes also because you are so happy to be in a beautiful place where the climate is better. It changes depression and the same place that our brains perceive pain is the same place our brains control emotions, feelings, and even depression.
If there is ever a cure for RSD, it will be in our brains through the limbic system and the Thalamus region.
I live in Indiana and went on a cruise for 7 days in the Caribbean going to Mexico, Grand Cayman Island, and finally my fav place in the world, Ocho Rios Jamaica. It was around 110 degrees there but my pain levels also dropped just like yours did and when I got back home where the humidity is so high and all the rain and cold winters make me hibernate you feel like you are a "walking barometer".
I bet you can tell when it's going to rain way before it does in Canada. It's no different in Indiana or TN. Going out west to Las Vegas one year for 6 days was also a God send to me. The dry air when it was over 100 degrees in early October made me feel better also.
I firmly believe our minds have powers we really don't use for pain control. I also believe the climates we live in cause our pain to be better or worse.
I have a friend with full body RSD that moved from FL after hurricane Andrew to TN where his son lives and hurts more now than he ever did in FL.
You also must remember that the endorphins that make us feel happy is part of the pain relief so our attitudes in these better climates also is part of the relief of pain.
I too was able to do more, take less meds for pain, and even have a couple of drinks that I normally would not do because of meds when I was on that cruise for 7 days. I felt like I also paid for all the extra things I was able to do for that many days in a row after I returned home also because we also do pay for over doing it.
While staying in a worse climate, I recommend you check with your pharmacist to make sure it doesn't interact with your current medications but Vitamin D is great as it gives us the "sun therapy replacement" we don't get in the climates we live in due to weather, winter, humidity, and even the barometer. You can take 1000 to 2000mg a day to start and that is probably good enough. I also am a big fan of Vitamin B Complex as my pharmacist recommended it to me for nerve pain as it has Vitamin B 6 which helps with nerve pain and my doctor agreed about this. The B 12 helps with energy and so does Vitamin D.
It isn't just the heat that helps our pain but also the endorphins our brains produce knowing we are happier.
When the barometer goes up, so does our pain.
You are not alone in this experience. I'm glad you have the resources to go and stay in the winter months. If I could afford to, I would have two homes; the one I own here where my family is and one somewhere in the Caribbean where I know my pain would remain less.
God Bless your less painful and happier experience with living with less pain. Just stay positive even in Canada and consider the vitamins I mentioned to help when you aren't in that wonderful place.
i had this experience when i went on vacation to Florida it was so hot there but i noticed my pain level was way down it was unbelievable! laying in the hot sun really helped. my doctor always says i need to move somewhere hot.i went back for 3 weeks the next year b/c i was in so much pain and sure enough my pain level went down again.it's hot where i live at the moment and usually in the summer months my pain is better but not this year.for some reason i've been having flare ups and horrible deep bone pain.my doctor just prescribed me topomax again i hope it works it stopped working a year ago so i went of it i guess it's worth a shot to try it again . i always look forward to the summer just b/c i have less pain but so far this year the heat is not giving me relief. i'm glad your vacation made your pain level go down it's always nice when the pain goes down a few notches.
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