I have severe arthritis, bone spurs in my shoulders and hips, and a total right knee replacement. He first put me on nucynta, which I had severe side effects on and couldn't tolerate. Now he's put me on Butrans 5mcg patches with lortab 7.5x2 for breakthrough pain. The patches provide only the barest of relief and seem to wear off completely after the 4th day. My Dr says that he doesn't believe in narcotics for my kind of pain, which is confusing since the patches are narcotic. I've had these problems for years and have a fairly high tolerance to medications. I tried to avoid pm for a long time, but have finally given in to the need. Does anyone have suggestions on how to deal with the Dr so he looks at me like a person in pain and not a junkie?
Unfortunately doctors here in the US have adopted a "no opiate" treatment plan - and forgot to include all of us chronic pain patients that are on opiate therapy in their decision. It's getting very hard to find a doctor that will prescribe, and for those of us that are still on the narcotics, the writing is on the wall - we need to wean off them. There are lots of very good reasons why opiates don't work for long term - yet there are so many reasons why they do - just how do we manage our lives without then? I would ask - insist - on any and every procedure possible to help with the pain; acupuncture; physical therapy; mind-body training - the works. And be insistent that your pain has not resolved. I know, not very concrete solutions for you but infortunately documentation of your problems along with your willingness to try other therapies - may help you in the long run.
In the short term, be prepared to live with as little narcotics as you get. And follow the rules very closely - your doctor still is prescribing you some narcotics. You don't want to mess up and not even get them. Sorry I don't have much help for you - ElizaJane
Do you have a Rheumatologist??? Have you yet tried Remacade infusions and also methotrexate??? Sorry, I forgot how to spell but I was on it for several years and BOY DID I FEEL BETTER!!! I had about 7 good years and then BAMMMMMMMMMM!!!
Unfortunately, I changed doctors when my doctor closed his practice opting for "research" instead and I got LEFT OUT IN THE COLD, PEOPLE!!! AND IT WAS MIGHTY COLD, UNFRIENDLY AND HARD TO FIND ANOTHER DOCTOR WHO WOULD PRESCRIBE THE SAME THING. AND I COULDN'T.
Okay, now down to regular case typing.
I am more concerned with what are they doing to slow down the progression of your RA.
My first Rheumatologist put me on low dose of Oxycontin... I mean LOW, LOW DOSE! Whatever the baby dose was... that is what I got and with the other stuff he was doing... I actually felt pretty darn good.
What else are you looking into??? I am interested in the direction you wish to go to treat your condition. Do you have access to a heated pool for some "aqua therapy"??? Boy, does that work wonders... you need to be doing a lot for yourself just to see what works and keep track of what doesn't. Like keep a journal of your journeys as you discover what works and what doesn't.
Be well and take good care of YOU!!! You are your own best advocate and I want to see you taking the bull by the horns and getting the best treatment that is possible for you.
Blessings and be well.
Hi Lisa, & welcome to the site, ( I just friended you too by the way thanks)I so understand your pedicament. I have OA so bad it is in every joint in my body. On top of that I have osteoporosis so bad I am now on Forteo shots. I can't tolerate NSAIDS, but if you can Celebrex is a good med for the OA. It really helps relieve the joint pain better than narcotics or opiates. I have to take oxycodone for my pain because I have so many different conditions. I have had 7 fractures of the spine alone from the osteoprosis, & several rib fractures too & my wrist. I also have the problems like you with th spurs along every vertebrae on my spine. I can so relate to your pain. If you have a good pain doctor they won't look at you like you are a drug seeker, but the first advice I can give you is too makes notes about your pain before your appointments. When, where, how much on a scale of 1 to 10 etc... What makes it worse, or better & on on.
Take these notes with you so they have a better understanding of where you pain is, & what number on that scale you live with from day to day. Pain docs are getting a bad rep today because the DEA & FDA have put into effect new guidelines they must follow treating pain. Some won't prescibe opiate type of pain relievers at all, & some have no problem at all. You may have to cahnge doctors if this is a problem. Just some thoughts...
Hey Lisa,and welcome!! Unfortunately in this medical climate right now narcotics are a no no. You are automatically considered a drug addict, regardless, and it's not just you, it's the DEA coming down on the doctors. (BTW, I hope that you don't live in FL, that's the worst state). You have to learn this doctor, and let him get to know YOU, and realize that you are not a junkie. Remember, he has to trust you too!! Offer to take urine tests,, even if he hasn't asked you for that visit. That way, he will see that you are with the 'program' and not selling your meds, or using others not allowed. Another suggestion is to bring either your significant other, or a good friend with you to vouch for your pain. I have been so angered that my PM won't listen to me, but my hubby comes in, and voila everything is ok. MAN that makes me angry, but it works at least. (I live in FL) Pill Mill country??
Good luck, and I see that you have had other great suggestions, so I hope that something helps you!!
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