Hello all, I recently had a new MRI on my thoracic and cervical spine because I've been having horrible upper back pain and headaches. My pain management doctor called me this past Friday (March 28) to tell me that I have four new herniated discs in my thoracic spine and that they found a 6mm herniation of my cerebellar tonsils, A.K.A. Chiari malformation. Does anyone else have this? I'm kinda freaking out. I'm trying to remain calm until I get in with a neurosurgeon. It really does explain a lot, but I have read that it can be a very dangerous condition. Any responses are welcome. Thanks in advance :)
Ok, try to take a deep breath and relax. They treat according to symptoms not radiological findings. There are things that can be done for it. The doc didn't call with a death sentence. If your pain dr makes the appt with the neurosurgeon you stand a chance on getting in sooner.
Sorry for all your bad news. I know on the website Patients Like Me there is a women on the fibro forum who had Chiari malformation and had surgery with a good outcome. Her name is Andriss and is always willing to explain this condition. She is the only one I know of who has had this. You might try her and good luck with this.
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