Anyway, I am 36 years old, was diagnosed 5 years ago after a traumatic spinal surgery where I coded and nearly lost my life. This surgery has been repeated two more times. I know that 75% of fibromites are female with a neck injury. I am on the highest dosage of meds that I can be. We have played around with meds for 5 years. Currently I am on 3 16 mg exalgo 3 x a day, 100 mg fentaly and take a total of 15 8 mg dilaudud daily, plus soma and xanax and valium. Now I am being prescribed the new fentora spray that goes under you tongue for breakthrough pain. First, I am itolerant to all fibro meds such as cymbalta (landed me in the ER 5 days in), Lyrica (causeed muscle contractions and blurred vision) and suvella made me want to crawl out of my skin. Nucynta was to worst drug I ever took, I hallucinated, nodded off at work on and on the freeway, go tachycardic and would lose my balance. Sorry for the long post. Is anyone else on this level of medication and has anyone else tried fentora, latest type being the mouth spray? Lastly, I suffer severe constipation as you can imagine. Work with both a GI doc and two pain docs (who want me on resistor). Does anyone have experience with resistor? What works well for severe constipation. All replies and shared expereinces will help as I am desperate to get my life back and live like a 36 year old. Thank you!
Hi cupcake, and welcome. Here you will find half a dozen "worst case of fibro" patients, and we understand, trust me!! The medications for fibro are poor, to say the least, and are big pharma's way of making money after they found out how prevalent fibro really is in this country. Lyrica is a pumped up Gabapentin, or generic neurontin. Have you had a chance to try that med? It is so much easier on your system than Lyrica. Cymbalta is a sorry excuse for an antidepressant, and since it didn't work so well, they got it passed as a fibro med. Honestly, the first thing that you have to do is to change your lifestyle. That is the most effective way to deal with the fibro. There are many websites devoted to helping people with fibro, and supplements are always mentioned. You are probably severely deficient in Vit. D, and you should ask your doctor for a blood test to find out your levels. That could be causing half of your pain. If your levels are low/normal, then you need supplements, because your system is taking the Vit. D out of your bones and organs. Another supplement to help is 5-HTP, but you have to take large quantities, about 300mg each night before bed. Google Dr. Roger Murphree, and Dr. Jacob Teitelbaum, whose website is "end fatigue . com" They will help you with what supplements to take, but don't buy from them. Instead go to Swanson Vitamins on the web, and get everything from that store. They have the highest quality, and best prices of supplements that I have ever seen.
Best wishes to you. I know it seems intimidating, but you can do it!! Just take it one day at a time!!
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