Hello all! I'm new here... Let me start with a little background. I'm 27 years old and was diagnosed with ovarian cancer a little over a year ago. After multiple surgeries and chemo, I started experiencing extreme pain in random body parts and some numbness and tingling of my feet and hands. After seeing my PMD and a rheumatologist, I have been diagnosed with fibromyalgia, osteoarthritis of my knees, and tendinitis of my elbows. I feel like I have tried a million things and nothing seems to work. I get a migraine almost every day as well as the terrible fatigue and pain. I have called 4-5 pain doctors who have all told me they wont see me because they don't believe in fibro. I finally found one that will see me but not for 2 weeks. I just was wondering what else may be a good idea to ask for when I do see her. I am currently on 60mg cymbalta daily, take fioricet for the migraines, .5 mg of Ativan if needed. I was given tramadol which does nothing at all and flexerol three times a day (but I can only take at night b/c I'm in nursing school, work, and have two little ones). My PMD gave me one script for norco 5/500, which HARDLY took the edge off, but said she wouldn't give me a higher dose or another script. I feel like a drug 'seeker' but I just Want to be able to function. Im desperate to have more Of a quality of life and would appreciate any suggestions of what had worked for you. Btw, I also tried physical therapy (regular & warn water) deep tissue massages and cortisone injections... None of which have given me much relief. Sorry this is so long--- I am just at wits end... thanks 4 listening!!!
Hi, first of all, welcome to the site! I'm sorry to hear you are in so much pain and can understand how frustrated you must be! I can't believe doctors can say they 'don't believe' in fibromyalgia.
Ok, first of all i would say to not bother with the tramadol, as you say they don't help anyway, and also they are very addictive so i'm glad you don't like them. I was going to recommend the cortisone injections but you say they didn't help much. How many have you had? In the mean time while you are waiting to see a doctor, have you tried acupuncture? It isn't as scary as some people think, and most people can't even feel the needles being positioned. I just know a lot of friends that have had great success with this and the bonus is that it's a NATURAL 'pain killer' so won't interact with any meds you are taking. I had a back injury 2 years ago, prolapsed disc and muscular damage, and my doctor put me on (among other meds) amitriptyline to take at night. They are an anti-depressant but can be used for pain relief and to help insomnia. They took a little while to kick in for me but i found them really good personally. I could wake up in the morning feeling less painful and more mobile, and the pain didn't wake me in the night. I don't know if this will be suitable for you but you could ask about it maybe?? If you are having pain in isolated areas you could also try a TENS machine. Another way to relieve pain naturally. Are the meds you're taking for your migranes working for you? If i think of anything else i will re-post. I'm sure you will get lots of response to your question from the other guys on this site so hopefully they'll have some good suggestions. Always feel free to write to the community here, we are all here to help each other!
hello I to have ovarion cancer... diagnosed oct 2011 surgery in nove2011 my ovarie was 9 pound tumor they took everything out including lymp nodes apendix and small parts of intitines and colon... then on to the chemo... they say I have a very aggresive type of cancer and am having heavy chemo ... the biggest drag is my white cells have shot down for so long i cant do anything... the neulasta shot helps but hurts bad like your bones r broken... I to was prescribed norco... which after 4 months of it started elevating my liver and had to stop... a cleaner better pain med is oxycodone but very addictive... the best relief for me is to take only the baresest minimum of pain pills and when i can do yoga and deep breathing..honest a good foot rub will calm me and help me thru some of the worst... norco wont work for this kind of pain I know... plus its bad for your liver get a dr. who understands and try oxycodone... but make sure u never feel high on it just let it take the pain down several nothches and when treatments are over cut doses back to half and then a third and then less pills and more walking yoga breathing and spend time with your spiritual self... keep hold and hang on... =0)
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