... flare up have been terrible I can hardly walk at times my hand feet and while body hurt and my ankles and wrist feel thwy could snap I just want to cry sharp pains in feet and hands burning pins and needle feeling and completely exhausted... help any ideas what to do
Hi there FC,
My heart goes out to ya, I'm the same age an reading what you wrote sounds exactly the same as what I've been battling with over the last year...
I have FmS an also CFS/ME an my flare ups was really severe... the rheumatologist prescribed me "BuTrans" pain relief 20mg patches, so with this an my normal meds including Lyrica Pregabalin I seem to be getting a bit more sleep an my energy levels have increased an thus pain decreased a little, makes life a bit more bareable!!!
What meds are you on???
Hope things settle down for you soon
God bless ya...
I take large doses of Gabapentin for my fibromyalgia. It took a few months to build up in my system, you start out with a lower dose and build up to as much as 3600 mgs per day in divided doses. It works but the weight gain is terrible. I liked Lyrica, which is similar, but it was too expensive for me.
I am 41. I've had fibromyalgia since I was 15, but wasn't diagnosed until in my late 20's. I tried a few different pain meds but so far lyrica worked best for me. I have been on the same dose for over 7 years now and during flare ups it doesn't always seem to work but I now have autoimmune disease on top of my fibromyalgia and so I will be seeing a Rhuematolagist myself next week for further treatment. For some reason in the state of Kansas the specialist don't really treat an illness such as fibromyalgia, if they think your regular doctor can do the job. Because there are so many small communities regular doctor has to know more information about treatment of certain illness. Also not alot of specialist available that take certain insurance. You might just need an increase in med or a change in med or an added med.
If that doesn't help then ask that further testing be done for another cause. Stay proactive with your health. Stay active when you can, take breaks when you need to. Don't push yourself to much. Take care.
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