Looking for real life answers. I've been on Prednisone 20 mg day for 6 yrs. One Dr.said 2000mg daily for 6 months and then taper off Prednisone. Has this worked for anyone to get off Prednisone and all of it's side effects.
i cant answer your ? directly but can tell u where else to look to get xtra opinion n other peoples experience with that med. people are saying pretty bad stuff about it... some1 had a ? about it and i read what people were saying and answered the ? myself. if you look in my profile you will see i answered a ? about Prednisone. if u click on that ?, itll tell you alot of what ppl think and experienced. some pretty bad and scary stuff n the fact you are taking it daily AND that much... scary too(or so ive heard)
I took Prednisone for a year. I was up to 40 mg per day for a few months. I started taking Cellcept. I think I started at 2000 mg per day.
My Dr. had me step down the Prednisone. I went from 40 mg per day to 20, then 20 to 10 to 5. He had me stay at the new doses for at least a month.
From 5 mg per day, I went to 2.5 mg per day every other day and 5 mg the other day. Then he had me go to 3 mg per day. Then 1 mg per day reduction per month.
After that, I stepped down the Cellcept from 2000 mg per day to 1500. Kept it at 1500 for a while (2 500 mg tablets in the morning and one in the evening). I am now just taking 1000 mg per day (2 tablets in the morning).
I have had MG since 2009.
hi ..ii was taking 15 mg daily for 3 months and gained 15 lbs so it is reduced to 15mg one day and 10 on alternate days. ii started taking cellcept 2 weeks ago 500 mg 2xs daily. ii now taking 1000 mg 2xs daily. I'm not sure if and when ii cam get off prednisone. ii am having a horrible time with the MG right now.. ii have trouble walking,chewing,swallowing,head bobble and overall weakness so iI am praying that this combo does something to help. ii wish you well.
I caught this back in 11/12. Came out of nowhere but think it happened when I had a back operation in May 2012. They say once they cut you open all hell breaks loose sometimes. I was in the hospital in April & may this year & had 7 plasma freezes to control it. Before I left, Dr. Deboo from Drexel who specializes in this & ALS was my attending. She put me on 60 mg of prednisone to control it. I am on a rotating schedule of 60/50; 60/40;60/30;60/20; right now. She started me on Celcep @ 1x2x day & now on 2x2x day. I am waiting to hear from her to see if I am going to go lower on the dose down to 5mg. She wants to see if the systoms return.I am on Mestarone 90 3x day & 180 @ bedtime. Really sucks.You can email me anytime you want to or call. 610-645-6369
I think it's difficult to get real life answers since what I am told since being diagnosed with it is everyone is different. Mine started in 2011 with just eye drooping in left eye and went to the right and that cleared up and didn't show up again until November 2012 with eyes drooping and could not keep them open. Then February started having difficulty swallowing, chewing, speaking, blurriness when reading and my job is customer service working on the computer so have been unable to work since February 5, 2013 because of the blurriness. I take Mestinon, prednisone and Cellcept. .
CellCept can be a hard drug to tolerate. I took CellCept (Mycophenolate Mofetil) to enable me to reduce the high dose of prednisolone I was on but found it made me constantly nauseous. However, I switched to Myfortic which is the next generation of Mycophenolate. This version of the drug suits me very well. I take 360mg of Myfortic 4 times a day and was able to reduce the 45mg per day of Prednisolone to 5mg in 2010. My autoimmune hepatitis remains under control and I seem to be coping well with this mix of immunosuppressant medication.
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