... times anyone else with myasthenia experiencing pain like this my doctor says im not in any pain yet it still hurts
I am taking Cellcept (mycophenolate mofetil) and have experienced pain in my knees and hips. It has slowly gone away though. I was diagnosed about a year ago. I had not had any trouble with my back or legs. I did have pain in my neck. I also had trouble keeping my head up when I was tired (neck muscles giving out). Now that I am taking three different drugs for MG, I am now symptom free.
I also have mg, found out 1 month ago. I've had pain in my lower back, neck and legs for years but when I couldn't walk I decided to have it check out. Don't let your doctor tell you if you are in pain or not, you know your body best. Be persistent and find a Dr. that will listen to you. The first Doctor I went to, made me feel as if I was this hypochondriac. I'm on mestinon now for 2 weeks, my lower back, neck and my legs do better. the soarness is still there but not as intense as it was. Find yourself another Dr..
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 14 Dec 2009 • 7 answers
Posted 24 May 2010 • 3 answers
Posted 9 Jun 2010 • 1 answer
Posted 11 Apr 2014 • 2 answers
Posted 14 Dec 2014 • 5 answers