... times anyone else with myasthenia experiencing pain like this my doctor says im not in any pain yet it still hurts
I am taking Cellcept (mycophenolate mofetil) and have experienced pain in my knees and hips. It has slowly gone away though. I was diagnosed about a year ago. I had not had any trouble with my back or legs. I did have pain in my neck. I also had trouble keeping my head up when I was tired (neck muscles giving out). Now that I am taking three different drugs for MG, I am now symptom free.
I also have mg, found out 1 month ago. I've had pain in my lower back, neck and legs for years but when I couldn't walk I decided to have it check out. Don't let your doctor tell you if you are in pain or not, you know your body best. Be persistent and find a Dr. that will listen to you. The first Doctor I went to, made me feel as if I was this hypochondriac. I'm on mestinon now for 2 weeks, my lower back, neck and my legs do better. the soarness is still there but not as intense as it was. Find yourself another Dr..
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