... when my left eye kept closing. I have been on Pyridostigmine and they recently added Azathioprine with no better results. I just went through 5 days of IVIG week before last and that didn't help either. I just keep getting weaker but what has my doctors really confused is my extremely serious loss of balance. They keep saying there must be something else because weakness, not balance, is the issue with MG. Like I said - they say there must be something else going on but have yet done anything to even begin exploring what that might me. To be honest, I'm scared
I have balance issues also, I was diagnosed 1 month ago with Myastenia. I'm on mestinon 45mg 4 times a day. I loose my balance when I am trying to hurry with what ever I am doing, I fell a few times. I do have better balance when I take it slower. The first 2 Doctors I went to didn't think I had MG or anything else wrong with me. I went to the 3rd Dr. that finally diagnosed me with MG but initially he told me I didn't have MG. I didn't have the usual (double vision)... I had a script from my family Dr. to rule out MG and that was the only reason this Dr. followed through with an emg for myastenia. He was very surprised when he saw it was positive...
Yes, I have had some balance issues, but I didn't know if they were related to MG. I also have taken the IVIG series and it seemed to help me for a while. I also take azathiaprine and it has done well for me. I still have some fatigue issues but most of the other symptoms are gone.
Yes. I carry a cane when I'm out anywhere to keep balance. It would hurt if I fell down in the store as well as scare people. I'm a Snowflake so it may be different for you. Weakness, Balance, Eyelids closing, impared speach, focusing, spelling, mind lapses all go with MG. Don't be scared, go with what you have and be thankfull. I became a snowflake 8 yrs ago with cancer to boot. I'm still here an enjoy everyday I wake up.
I have MG and severe balance issues. I went to my eye doctor who specializes in neuro opthamology. He said my eyes are fine the only where are you to rid myself of double vision is to cure my MG. I'm taking pednisone; lyrica; cymbalta; aziothiaprine. Some days are better than others. If I close one eye my double vision goes away. Just make sure to keep a cane or walker with you. I pray you get releif
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