... when my left eye kept closing. I have been on Pyridostigmine and they recently added Azathioprine with no better results. I just went through 5 days of IVIG week before last and that didn't help either. I just keep getting weaker but what has my doctors really confused is my extremely serious loss of balance. They keep saying there must be something else because weakness, not balance, is the issue with MG. Like I said - they say there must be something else going on but have yet done anything to even begin exploring what that might me. To be honest, I'm scared
I have balance issues also, I was diagnosed 1 month ago with Myastenia. I'm on mestinon 45mg 4 times a day. I loose my balance when I am trying to hurry with what ever I am doing, I fell a few times. I do have better balance when I take it slower. The first 2 Doctors I went to didn't think I had MG or anything else wrong with me. I went to the 3rd Dr. that finally diagnosed me with MG but initially he told me I didn't have MG. I didn't have the usual (double vision)... I had a script from my family Dr. to rule out MG and that was the only reason this Dr. followed through with an emg for myastenia. He was very surprised when he saw it was positive...
Yes, I have had some balance issues, but I didn't know if they were related to MG. I also have taken the IVIG series and it seemed to help me for a while. I also take azathiaprine and it has done well for me. I still have some fatigue issues but most of the other symptoms are gone.
Yes. I carry a cane when I'm out anywhere to keep balance. It would hurt if I fell down in the store as well as scare people. I'm a Snowflake so it may be different for you. Weakness, Balance, Eyelids closing, impared speach, focusing, spelling, mind lapses all go with MG. Don't be scared, go with what you have and be thankfull. I became a snowflake 8 yrs ago with cancer to boot. I'm still here an enjoy everyday I wake up.
I have MG and severe balance issues. I went to my eye doctor who specializes in neuro opthamology. He said my eyes are fine the only where are you to rid myself of double vision is to cure my MG. I'm taking prednisone; lyrica; cymbalta; aziothiaprine. Some days are better than others. If I close one eye my double vision goes away. Just make sure to keep a cane or walker with you. I pray you get releif
I am a 76 yr old woman. I was diagnosed in Dec. 2005 with Multiple Sclerosis (MS) at the age of 63. I had gone to the Dr because of changes in my eyes and the balance issues. I have taken Interferon shots (Rebif) 3 times a week since Jan. 2006 until Feb. 1, 2018 when my last prescription ran out. Rebif is expensive and my insurance company would no longer pay for it. The insurance company suggested some generic drugs to try. My Dr suggested that we not use anything for 3 month to see if I was in remission as I was doing very well.
I went to see my Neurologist last week after actually being off of the Rebif for only 2 months. I told him I didn't think I was in remission because my eyes felt like they had
gone backwards a little, and they want to close all of the time and they don't always want to open when I want them to. My balance has not gotten any better. I was falling all of the time. I had a serious fall Labor Day weekend in 2017 that resulted in a total shoulder
replacement on Nov. 2, 2017. My walker is now my new best friend.
The Dr asked a few more questions then sent me for a nerve study test. The result is that
I tested positive to Myasthenia Gravis (MG). According to the Internet, MS and MG are similar in the way they effect the body and it is not uncommon for MS patients to have MG, and vice versa. I looked it up under "Myasthenia Grsvis in patients with Multiple Sclerosis".
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