long? Just asking...
i've ha fibromyaligia for over 20 years and I'm in my late 50s. And what I've learned is that it comes and goes, depending on my activity level. I've learned to keep my stretching going every morning because I have to work, this helps. but by the end of my work week, any where from 45 to 58 hours, I'm so tried and in so much pain that I wonder if I can make it the next week. Some days are a lot harder than others but I try to keep going. Every once in a while I will get bullheaded and try to ingore it, but Mr. Fibro always seem to catch up with me. I wish I did not have to work, that would really help a lot, but as the saying goes, I owe, I owe so off to work I go! LOL.
You know sometimes you have to laugh just to keep going. But that's life with Fibro!!
I have had fibromyalgia for about 13 years now and I can't think of a time that I've gone into remission. I am also in a support group with 7 other women and nobody has ever talked about remission. I have gotten worse but that could be my osteoarthritis causing it.I don't know if this has helped at all but I hope it has.
Sadly but not surprisingly, my answer is the same. I used to have just a few bad days, then I would get two weeks out of every month, then it was a week, and then a few days and then it would be MAYBE one day each moth would be a pain free day.
Now, there are no pain free days. I have days that I can manage my pain with pain medication and I have days that I don't get off the couch [except to pee] and I sleep/wake/sleep/wake.
I believe that in part fibromyalgia is a sleep disorder. It is directly connected to our sleep cycle and if you have never had a sleep study done, I suggest you have one. they can be very revealing. My sleep study showed that I go from stage one directly to REM stage. I completely skip over the restorative sleep part, which we need to reset our muscles from our previous days activity. My muscles never reset, they never get to rest so they scream at me in agony.
It also explains why I can get by one 1-3 hours of sleep each night [for years and years and years] my brain/body is tricked into thinking I am well rested.
Best of luck to you : )
I 'll go a few wks or maybe a month feeling better without having a lot of pain and my fatigue will not be as bad But then I'll go through a few days to a wk of were I'll hurt and sleep all day long for days. I've had it bout 6yrs. The vitamins I take help alot I refuse to take the meds the dr's wnt me to take. If u have alot of pain in ur hands like I do the Tommy Copper gloves really help out.
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