... thank u all - I don't feel so alone! I am a Dr's worst nightmare - I have so many diff diseases & some of them r rare enough 2 they belong on a House episode :-) They range from things like Malabsortion Syndrome & GERD severe enough that I've set records & had 5 of my 16 surgeries for to the chronic pain stuff like severe osteoarthritis basically everywhere, degenerative spinal d/o, bulging & compressed discs, and a congenital defect in both knees that no one's ever seen! All of this means I take a lot of meds & am hypercareful about keeping track of everything cause I learned the hard way that u can't always trust ur Docs 2. Fortunately, my job requires me to be good at research, stats, research design, etc. Sorry, enough rambling about my background (having a wicked pain day) so on 2 my question: My PM doc just arbitrarily took me off Soma & on Zanaflex (which is contraindicated w/ some of my other meds) & I've been *miserable*. I researched all the muscle relaxers on this site & am so confused. Flexeril was the only one other than Soma that I might be able 2 take w/out contraindications w/ other meds. So question 1- it's gotten mixed reviews here - anybody have any luck w/ it? Question 2 - I know there r lots of meds that we aren't sure how or why they work, but from all I read about Soma, that's one that *really* seems like "why the hell does this work?". I know it worked 4 me but I don't know how or why. Should I take the "if it's not broke don't fix it" approach w/ both my doc & myself? Question 3 - since I hit Ripley's Believe it or Not on all things medically weird, I can't take pain meds the way "normal" people can. Everybody at the hospital call me the "cheap date" :-) All I can handle w/out getting violently nauseated is 2.5mg of Norco & the same w/ Roxycodone. Does anyone else have this problem? Oh & I can't vomit (side effect of gastro surgeries) so Good Times! I know the addiction controversies re: Soma but even my doc knows I can't get addicted 2 anything even if I tried (my sis is a recovering addict & I've seen her take 10 Norco at the same time - I'd love 2 be able 2 take one!). I have to halve Soma but it really does help. Is it crazy unreasonable 2 want one of the few things I can take? Since Dr abrubtly stopped it a week ago (shouldn't he have at least titrated me off?) I feel there's something wrong w/ me 4 wanting a drug so much & I feel weak 4 letting the pain get 2 me so much that I've cried. I am SO sorry 4 how long this was. I guess I just needed 2 tell somebody, anybody who might understand. I would love any feedback on any of this. Thank you so much
My problems are very minor compared to yours: hypothyroidism, secondary adrenal insufficiency, IBS, 35+ years of insomnia and body pain.
I have horrible chronic muscle/tendon/ligament pain in my neck and shoulders--supposedly caused by cervical stenosis.
All I know is that SOMA is the ONLY drug that has EVER worked for me!
You can keep all the pains meds--- they were like eating candy--never even touched my pain. But when a doctor gave me Soma as a muscle relaxant
it was a miracle. It LET me sleep, and wake up clear-headed and pain free!
I know that MANY people on this site hate Soma, and call it highly addictive--as do many doctors. But there are a couple of us here who love it, and tell the world how it is the only med that has ever helped us. I have taken it since 2006, and have never had to increase my dose--it just always works!
If Soma is what works for you, then ask your doctor to give it back! If he won't, then find a doctor that will--- they are out there, just hard to find sometimes. Soma MUST NOT be taken if you have an 'addictive personality', but, from what you say, that isn't an issue for you.
WHY do all these docs want to give us all the really heavy duty pain meds that ARE addictive (and expensive), when, Soma is out there, is cheap, and works??
Good Luck to you,
Mary, the madhatter
(it is late here, so am going to bed, but will check back in the morning)
Hello echo, & welcome to the site. I hope you have been on here reading some of the comments & Q & A's for awhile, but even if not, there is a big controversary on Soma not only with the docs. We were told thru the grapevine last year that the FDA was going to reccommend it be pulled for some reason or another. I too am a chrontic pain sufferer, Infact it sounds that we are quite a bit alike. Our stories just coincide a bit to say the least. My husband also suffers from chrontic pain & just very bad health issues. He took soma when I first met him 20 some odd years ago, & he had just had his 4th or 5th back surgery & soma was the only thing that helped him. Even back then he had trouble getting a doc to prescribe it. He had his surgery in sunny Calif. At th big University, (UCLA) but we live in Illinnis. Back here the word soma is like a dirty word. I take flexeril & it really helps me out.
I have a multitude of tummy problems also with the GERD, ex-gallbladder, that acts like an ex- boyfried. Won't leave me alone, so know from where you come from there too. I have to take omprazole & the FDA ruled it causes femur fractures. My bones are so bad I'm on Forteo, the last frontier so to speak!everytime I decide to stop it , very nest day I have acid eating away clear up to my throat. Ephosgeal cancer? No thank you! I', just take my omprazole & hope the Forteo gets the idea & works before it's too late. I even inject it in my thigh! Get right to the source! Ha! I don't know where you live ofcourse, but in Texas apparently you can get soma around Austin I hear thru the grapevine, again, but wouldn't advise moving just for that reason either!Also be aware that just because I tolerate Flexeril dosen't automatically mean you can of which I am sure you already know thru your pain pill experience. Have they ever offered you anything like Lyrica (which I take in a small dose or I get blurry vision), or gabepentin? They are seizure drugs that really help with pain. FDA approved so not a problem with insurance,& such as Lyrica is quite expensive. My hubby takes the gabepentin. Also there are so many different kinds of pain meds. If you tolerte small doses, maybe a long acting one where you get a small dose thruout the day would help you out. Oxycontin comes to mind. It really helps a lot of people with the pain problem. The flexeril I could not live without! I get they hoorible muscle spasms in my neck like most people get in the legs r feet? Well I get them too if I forget to take my Vit C everyday, but my neck! What are you suppose to do. Jumping jacks? Heck my whole body would react to that one! So I take a flexeril & a heating pad. Can't walk out your neck like your leg! Well, I am writing a book here, but you asked for it ha! Hope you get your soma, but if not try the flexeril & see if it helps. If not try another one like baclofen (ugh with the tummy problems)Another pain med that is timed released (made me throw up) (I know I'm not helping) is the fentanyl patch which is also timed released & never goes thru the intestinal tract. Well the kidney & maybe the liver as all drugs are secreted this way one way or another, but by passes the tummy. Worth a try to check into these time released meds for pain I think it's your best option, Can't believe your doc hasn't suggested it to you yet.It's early still on my first cup of coffee so not quite awake to think of many more, but others will come along & give you great answers too. I wish you well, & if you have any questions, feel free to ask...
Dear Echo. I just wanted to welcome you to our wonderful group. We have so many helpful and supportive people here. I am so sorry for all of your ailments. You poor dear... you have been through the wringer.
I am sorry to say that I really can't help you with your questions but I know that there are plenty of folks here who can help you.
I just wanted to welcome you and help you feel welcome to our group.
God bless you my dear. Have a wonderful day... pup
Soma has become a big "no no" drug lately. I'm like you, I think it is rather moronic to prescribe OxyContin but not Soma! (My current Dr felt the same and finally gave me my Soma back) The big buggaboo about Soma is that it breaks down into meprobamate in the body. Meprobamate is the same drug as the old sleeping pill Miltown that was taken off the market years ago because of it addictive properties. Also a few years ago, Soma was really big among high school aged kids-they have since moved on to other drugs but the medical world is a bit behind. All the pain docs and many FP's (family practitioners) have now jumped on this bandwagon that Soma is too addictive and there are other alternatives out there that are less dangerous. Well if you have been on it for years without a problem then I dont see what the big deal is.
Honestly! I would just try telling your Dr that you tried the other drugs and they dont work for you and point out that you never had a problem taking Soma and ask if there is any way to have it back because (here is the "kicker") my quality of life has gone way down hill. Say it just like that. That way he can document that other options were tried and your quality of life was not as good. There is nothing "bad", "weak" or wrong about wanting to feel better. You know what works and it is only natural to want what works! Hang in there. Hopefully your Dr will relent and allow you the drug that works.
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