Muscle Pain - Dermatomyositis- What is the normal CPK's to be considered in remission?
- 24 Jan 2014 by pamee
- 14 Jun 2014
- peripheral neuropathy, pain, dermatomyositis, muscle pain, muscle
My ck's were at 7,000 and now down between 250 and 275, but still have severe muscle pain and my hands and face are turning purple again, but my rheummy said I am in remission so I am somewhat confused as to why I am having this horrible muscle pain and weakness flare up if in remission?
Thank you in advance,
Added 24 Jan 2014:
I was diagnosed with fibromyalgia; however, I don't think it is a flare from fibro due to my skin turning purple again
Oh my, I wish I could help u with answers,but I know nothing about this. I so wish I did! Please be patient ... someone will see this and respond. There are a lot of knowledgeable & caring people on here. I hope u have seen your doctor by now or have gone to the emergency room?! Please give us an update on your condition? I'm sending u a prayer with lots of love behind it. God bless ~ sincerely Fay
Your question was posted in Jan... How are you feeling now? I was recently diagnosed with dermatomyositis in March. My ck levels are going down now at 865. Normal ck is 18, however anything under 200 is acceptable. I hope your feeling better!
I know this was posted six months ago. So I hope you are doing better now. I have been in what Dr.'s say is remission twice now. I went in remission at 15 and had a small relapse at 30 and back to remission at 33. I still too get inflammation flare ups especially by my calcifications that can get so hot my skin will actually be red as a firetruck and peel from the heat. I also have days where my whole body wants to shutdown. I have figured out that remission just means that I am not sustaining or showing an increase of high cpk levels but doesn't mean I am not going to feel like crap once in awhile. I hope you are doing better.
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