... sending me to PT and I'm now in a wheelchair. Why should I keep going to any MS dr's if they don't do anything?
I have recently started LDN and a diet that is Lactin free along with the diet recommended by Dr Wahles in her book "Wahles Protocol" --- I started LDN a week ago and can tell you it has breathed new life into me and maybe it's the diet and the drug, diet alone or the drug alone -- I have more pain but it's different pain. Like my body is detoxing through my muscles that have been in knots and stiff along with contraction for the past 10 years -- I have RRMS but my Nuero said aspects are secondary progressive. He won't change my diagnosis because some symptoms do go into remission following a flare where others remain or slowly worsen. Talk to your GP about LDN or goto the web and do some research. Again it's new to me and it's something I have researched over the past year. I am going to PT 3x's weekly which is helping and have been doing for 4 months now. Swimming helps my ability to strengthen when my legs don't hold me up.
There are things within your control and the first part is fixing your health outside of your diagnosis of ms -- I spent too many years listening to doctors that treat every symptom and diagnosis but forgot me as a person.
I have RRMS for the last 11 years. I have been taking LDN for most of that time. My symptoms are annoying but stable. I can walk but muscle weakness in my arms and legs has lead to tendonitis, due to overuse. One thing about LDN. I was in the emergency room recently for an unrelated problem.
When they saw I was on LDN, it complicated the treatment for my pain. Also, stop taking it at least a week before any planned surgery.
I'm a firm believer in being proactive in management of my MS. I was dissatisfied with the Dr. I had at diagnosis so I did research and found a very good one. A good neurologist is vital to managing your disease. In addition to working with a great Dr., it's important to personally be proactive in your diet, exercise, and mental health. I found that a good counselor helped me deal emotionally with my challenges, which gave me strength to focus on diet and exercise. Chair yoga and also water exercises have been most effective in helping to keep me mobile. I especially like the water because there is no pain while in the water. Eating a healthy, well-balanced diet and eliminating processed foods and sugars made a big difference.
Please don't give up on treatment! Call your local MS society for references to find a new Dr.
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