... getting an MRI. I've been diagnosed with alot of stuff. In the beginning it was Bi-Polar: not, West Nille: not, Thyroid problems: basic tests are fine, Lupus: maybe, and now MS: maybe. How many years and doctors and tests does it take to make a diagnosis? Symptoms (in order of appearance); fatigue, got every case of cold or flu around, entire face broke out in a fine rash, memory loss began along with migraines, hair loss, weakness and dizzy spells, dysphagia and nutcracker spasms, severe stomach pain, vomiting 5-7 times a week, high loss of nerve response, severe weight loss (40lbs in 6 months), very bad short term memory loss, loss of balance, slurred speech, catheters needed to urinate, and now nothing smells or tastes correct. Is there anyone And I have a doctor for everything. And each one has a different idea but no one wants to diagnose. Who feels this is more one disease than another? Common symptoms? Thanks.
Hello freakinoutthere, & welcome to the site. I know July is a month away, but a rheumatologist should be ble to get to the bottom of what is going on with you. They usually, if you get a really good one, will run all sorts of specail labs including an ANA panel that will check you for any of the autooimmune diseases you have mentioned. They will also run certain blood tests to see what your response is to imfammatory diseases. Just hang in there, & hopefully you will have answers soon. I know how you feel, I was diaganosed with lupus for over 12 years becaue my ANA kept coming up as positive, but the last one was negative. Since finding that out, I don't seem to be having as many of the symptoms as I did before. The mind can play funny tricks on you when you know the symptoms of a disease & a doctor tells you you have it. Of course we are not doctors, but will support you in any way you need.
This is a wonderful group of people with just about any condtion you can think of, & are very supportive to new members & even the old timers. Please try to keep as calm as you can until you see the rheumatologist & the tests are complete. I will warn you tho' that a ANA test takes 4 to 5 weeks to get the results because it has to be sent to Mayo Clinic for analysis. So hang in there & keep posting. You'd be surprised the number of people who will respond.So hold that chin up high, & hopefully we can get through this together. I wish you only the best... Mary
Hang in there. At least they are not concerned to get you in right away! Or I suggest you talk to the doctors nurse and tell them of your concern and that because of your symptoms you are freakinout. Let them know the anxiety is driving you nuts and you will take the first available appointment for any cancellation. Be sure they know about the fast weight loss. Make sure they know your symptoms are difficult to deal with.
every doc has a special need spot for emergent cases in their schedule. Some talking will get you that spot. It works for me. The front desk has to go by their rules. Nurses are far more understanding. Karen
I sure am sorry to hear about all you've gone through and been going through... I'm glad you're hanging in there the best you can for the kiddos... they do give you reason to fight. Your MRI should be in a couple weeks now? You can add kidney problems to your list of symptoms... I don't know if that makes it any closer to MS or lupus or what... but you sure are fighting with something that definitely sounds autoimmune (in my opinion.) Wish you the best! Here to talk if you need!
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