I have poly arthritis, fybromialgia, Sjrons disease, and depression and anxiety problems. also a thyroid condition. I am in a new area and am having trouble finding a doctor. I have NC Medicaid. I live my life in constant pain and with chronic fatigue. I am a mother and I am fighting to find a way to have a quality of life allowing me to be an interactive mother to my 10 year old son. PLEASE HELP!
What am I to do with multiple chronic pain conditions?
Added 16 Jan 2015:
I have relocated to a different county and am now faced with finding new doctors so I appreciate the website suggestion to help with my search! I had previously had a wonderful primary care physician and had been seeing a rhemotoligist (which is how I got my diagnosis in the first place, which it took years to receive and accurate one) Now I am starting again at square one and it is quite difficult dealing with my agoraphobia and depression..... so frustrating. I am also having to find a new mental health treatment program. I was taking lyrica and percocet which helped... along with plaqunil and motrion and cymbalta.... i know it seems like alot of different medications but its what seemed to work for me. and believe me when i tell you that I tried many different medications to find this combination. Thank you to all and any suggestions, responses and feedback.
Welcome to the club. I don't think any of us have just one thing causing pain. Do you see a pain management dr? Are you on gabapentin or lyrica? What about a rheumatologist. And of course you have to find a good primary. If you go to healthgrades.com you look for a primary in your area, and you can check on each one.
Hello Momapeia - My reply to you may not be very helpful as to providing you with answers for your chronic pain. I live in Australia and most of the members here live in the USA.
We have a different health care system than the USA and Australia is often behind in the latest research or changes to policy regarding prescribing pain relief. What we do have in common is how difficult it can be to find a Doctor who will not discriminate against you if you ask for a specific pain relief. Doctors ego's are so sensitive, they often object to straight out requests for any narcotic type of pain relief. They will think you just want to party, idiots.
Hopefully someone will reply soon who can give you the right answer to your needs. I just want to send you many blessings for a positive outcome asap.
Not knowing whether you have been prescribed pain relief before, I would like to advise you to research what your rights are prior to any appointment with a pain management Doctor.
Also educate yourself all you can about pain medication, side effects and statistics regarding long term use.For example, I can not take any kind of anti inflammatory medication because they make me bleed internally. Anti seizures like Lyrica or Gabapentin have side effects that for me are too much to tolerate. Lyrica makes me feel like I am drunk, it gives me blurry vision which then voids my car insurance if I drive. After two years of trial and error the only pain relief that worked well for me with minimal side effects was oxycontin dosed 4 times a day. Prudue who make the drug claim Oxycontin is a 12 hour slow release so getting the authority to be prescribed 4 times a day wasn't taken lightly. I am prescribed 220 mgs a day and have been stable on the same dose for four years now.
When I started taking pain relief I knew virtually nothing about what was available to help control chronic pain after having a back injury that causes severe pain.
What I have learnt after dealing with many Doctors and health care workers is that as soon as they see I am prescribed a narcotic they immediately assume I must have a problem with abuse and addiction.
It is a ridiculous situation chronic pain sufferers have to endure just to gain some quality of life.
Therefore I also recommend that you compile all your evidence to support the reason why you have chronic pain. Do not for a moment allow a Doctor or health care worker treat you like a drug addict in any way. If they do then they are breaching Code of Conduct by not giving you the respect you deserve. Remind them that you are NOT a criminal looking for a thrill to go to a party, you are a responsible citizen razing a child on your own. You need to be able to function so that you can be there for your son and be able to do the exercises recommended to strengthen your core muscles. If you have no history of taking extra or Doctor Shopping remind them of that as well. In other words have ZERO tolerance for any behavior that brings you down. I always find if I come across a negative attitude towards what I am prescribed, I will quietly but firmly let the person know it is there BEHAVIOR I object to rather than reject the person.
You can read the Code of Conduct for Registered Doctors by going in to the Medical Board web site of your country. Print it out if you can and know your rights. Educate yourself about the consequences of not having respite from chronic pain and what that will do to the body. Know the LAW regarding being prescribed a controlled drug.
When you do get prescribed some pain relief take it EXACTLY how it is prescribed. It is so easy to get caught up in a viscous cycle of taking that bit extra if you are experiencing pain and right there is something that will give you relief. Never think to yourself that the next day you will make it up by taking less.The next day the pain will be there again only you have to get through the day with less. Before you know it you are running a few days short before you can get another prescription. The Doctors and Pharmacists have heard all the excuses under the sun as to why you are short. They have no empathy at all for people in that situation even if it is not your fault after all they can't feel a thing and they love the power they have over you.
One last thing is to remember, do not expect to have relief from your pain 24 hours a day. If your pain relief can help you during the day then that is awesome. If pain is keeping you from sleeping at night try every strategy you can to help yourself without reaching for a pill. Eg. Heat bag, topical anti inflammatory gel, muscle relaxant (be very careful of Valium)
Before you go to your appointment make sure you are organized and run through the answers to questions they might ask. I suggest you keep a diary of your chronic pain and how it is impacting on your life. Take someone with you if you can because they can validate your answers but make sure they do not speak unless you ask them to. They are there to give you support and maybe take notes of the Doctor's advice. Know that you have a basic human right to receive relief from your pain and I emphasize do not let the Doctor bully you or treat like a second class citizen.
I am telling you that because over the past four years I have been treated very badly by the people I went to for help. I never lie or exaggerate my pain but because pain is invisible sometimes Doctors have denied me help.
Best wishes to you, I hope I gave you something that will help you get the care you deserve. I don't want anyone to go through what has happened to me. Especially when the pain I endure is not at all my fault. Being a sole parent is hard enough. I hope you have some support, it's a big job being both Mum & Dad. Take care,
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