The doctorsng again that I need to be tested for MS. Does anyone out there have it? How were you diagnosed and what were your symptoms? Are you in pain all the time? I am scared and I am trying to trust God to help me but I have so many other issues it is bringing me down. I suffer a lot with pain and muscle cramps and fatigue. Like I said I have so many other health issues so this is hard to take. I have had blood work but the doctor said a spinal tap is necessary. A spinal tap is hazardous for me too because I have to come off my Coumadin for awhile and I have all kinds of rods, screws, pins etc in my back. I usually have to stay overnight if a spinal tap is done because of the hazards. Please people I really need support now, you were all there for me when I had the cancer scare and I need you again. Thanks my friends, marjorie zych
MS--How were you diagnosed?
- 19 Nov 2010 by marjorie zych
- 5 June 2013
- depression, multiple sclerosis, pain, fear
Added 19 Nov 2010:
Sorry for the spelling. It is supposed to say The doctors are saying again---
Thanks for listening folks I am scared so I really appreciate all the help right now. marjorie zych
Wonderful sweet Marjorie!! God has your back, so do we! I know how scared you must be but remember this, you do not have to go through this alone. Remember the well wishes you printed out before your hospital stay? Do it again, it worked a miracle, didn't it? Trust in your doctors Marjorie, they will take excellent care of you and God will guide their hand. Bless you and fight the good fight again!
You will never, ever be alone. You are so loved and cherished by so many people. God has the answers, we have the prayers. Trust in that.
Dear God, please watch over our dear friend Marjorie. Give her strength and courage to get through this difficult time. Guide her doctors hands and I promise you I'll be forever in your debt. Amen.
Ask your doctor about having CT scan of your brain. MS is (I believe) usually found by viewing brain images, they myeline (sp) sheath is affected.
This is visible on brain scan. I would think having a spinal tap would not be necessary, I was checked for MS in my early twenties, and no spinal tap was ever required.
I just have fibromyalgia, but doc keeps thinking it might be MS, but it IS NOT!
Don't worry too much, ask doc to forget the spinal tap lady!
I was actually tested for MS as auto immune diseases are comman in my family. I actually think it depends on what part of the body is affected. For me, it was my face, it would twitch, go numb and my mouth would draw. I was able to have a MRI to check for legions. Thank God the test was negative. I do have a cousin that has MS, she did have to undergo a spinal tap. She was able to find meds that make her life tolerable. She works for time and her most comman symptoms are constipation, and tingling in the extremities. MS also goes into remission where there are no symptoms at all. I will keep you in my prayers.
Before the MRI there really was no real way to test for MS but to rule out everything else. Now with the MRI, MS is diagnosed by looking for the sclerosis or damage to the myelin sheath that covers the nerves. The MRI appears to be the best test to date for MS. CT scans can be used by the MRI is preferred because the CT scan uses a high level of radiation. I am not sure why they would do a spinal tap for MS but I am sure there is a reason, I just don't know why. I hope for your sake, Marjorie, it is not required. I think you have been through enough invasive procedures that you could use a break. The metal they use to fuse is safe to go through the MRI, however, you may have enough scar tissue at this point that there may be too much refraction on the MRI to get a clear enough picture so that a CT scan may be warranted to get the clear picture required to see what needs to be seen.
As far as symtpoms go, everyone with MS has different symptoms because it depends on which nerves are affected. The nerves that are affected determine your syptoms, therefore if the nerves that carry pain signals are affected you are mostly to have pain, but if it is you motor nerves that are affected you will have trouble with movement. Now it is possible that you can have areas of sclerosis in the motor areas and the sensory areas and the speech areas etc, as well as some areas of sclerosis in the brain and some in the spinal cord. Some people only have one tiny area that is affected where as some people have many areas of sclerosis. No two people have the same disease process with MS. It is very individual. There are also different types of MS; exacerbating/remitting and chronic progressive etc.. There are a lot of questions that you will need answers to but you first need to know if you are even dealing with MS, so please don't worry about this stuff yet. You will drive yourself crazy. One thing I can say is that the organizations for MS are fantastic and the information that they provide is great. They will be able to answer your questions. If you have questions on how MS is tested get in conteact with them now. There are several organizations. One is the Mulitple Sclerosis Foundation (I think). I haven't dealt with these groups for a few years but if your google the names they will come up with something along these lines and you will find a place to start. I know you will come out on top on this and you know that, as with other things, we are always here to help you. Again I have said too much. God Bless you and know that you are never alone. Happy Thanksgiving!!!
Wish you all the best Marjorie, I know you can pull trough, you have done it in the past & shall do it again, we all join hands in prayers for your well being, take good care of yourself, all will be well, God bless!
Please be strong, it is a very frustrating process when the Doctors diagnosis MS. The reason for the Spinal tap it to check the antiobodies in your cerebral spinal fluid(CSF).
A spinal tap that reveals a large number of immunoglobulins (antibodies) as well as oligoclonal bands (the pattern of immunoglobulins on a more specific test) or certain proteins that are the breakdown products of myelin is suggestive of MS. These findings indicate an abnormal autoimmune response within the brain and spinal cord, meaning that the body is attacking itself.
The MRI will give the doctor a better idea of the lesions that are directly affecting the brain or myelin sheath. That is the most accurate test and will rule out MS quickly. I know they are uncomfortable, I have had 12 in my life and cursed each and every one of them. I hope that this helped you a little bit, I have had MS for 15 years I was first diagnosed with RRMS, now I have Secondary Progressive MS. I don't let MS get me, I have MS not the other way around!! I also have Spina Bifida Occulta and a seizure disorder which has made for an interesting medical journey. All in all I count my blessings each and everyday and I would impart this to you, stay positive and join the National Multiple Sclerosis Foundation and your local chapter they are awesome!! They have so many programs and their online forum helps bring us all together. Take care of yourself Marjorie I am always here if you need me..
Hi there my sister was diagnosed in Feb. We recently descovered that she has progreive MS. Which means she only gets worse not better and she doesn't get relapses. August last year she started to get extreme pain in her legs. December she could not walk at all nor do anything for herself. An eye specialist actually discovered that something was wrong and advised us to seek a neuro's opinion.
I have not been diagnosed with MS but from my symptoms and the mri they suspect it, and the report was anything but norma! I don't want to have a spinal tap either. I hear that doesn't even confirm it, it just rules out other diseases. My health went down hill in Feb of 2010 and I was under a ton of stress. So I am just trying to stay healthy and also see my liver doc for way elevated liver enzymes. Someone told me that if MS does not affect your mobility it will affect your organs. Does anyone know if that is true? Of course I will ask my neurologist when I next see her but I just thought I would check on here.
Diagnosing someone with ms is different for everyone. Most of the time, it's done by a MRI or spinal tap. Or if you have Optic Neuritis, that's a very big key indicator. I got diagnosed at 14. I had a brain biopsy (very extreme and most unlikely if you fall under the proper "diagnosis age requirements"). But since I was so young, they at first thought I had a malignant brain tumor. My symptoms were, extreme dizziness, vomiting, blurred vision, bad ataxia to the point I couldn't walk, and weakness.
Again, everyone is different. But urge your doctors to get you an MRI of your brain and cervical spine. If eyes problems, go to an neuro-ophthalmologist and ask for a split lamp, OCT and a visual field test. Also, I'm unsure where you live, but get blood work done. Get checked for Lyme disease and see what your vitamin D levels are. Patients with ms typically have a low vitamin d level. And as you know, the all famous spinal tap. In my case, they did that with my brain biopsy. So I was knocked out, plus in ICU for a few days.
Best of luck to you. Ps: if you do have ms, welcome to our family. We're the best and most lovely people out there! Lol
Hi! I was diagnosed when I was 20 and I am now 37. I was diagnosed because when I went to work that day I told them the lights were really bothering me and I felt maybe I had the flu. I left work and by the time I got to the highway I was seeing 5 of everything. I would look to get over into another lane and I would see 5 or 6 cars that were only actually 1 car. By the time I got home my right eye was lodged over to the right side of my head and stayed there! I went to a optomologist and he took one look at my eyes and sent me to a Neurologist They did there test and when I went in for the results he told me I had M.S.! He showed me the mri that they had taken and he showed me how they came to there conclusion... He showed me that in the middle of my brain there where 2 little spots that looked like peas. He said that was demylintation. A for sure sighn I had this disease.He also told me that if I didnt get sick within the next ten years with m.s.
I would problobly go many years without a remission. I lasted 12 years after that and had 90% sensation loss in my feet. They did a MRI once again, and it showed I had 2 more lesions!4 years after that I started having severe back and neck pain..They did more mri's and when I went in for the results, I asked my dr. how many lesions do I have now? His reply was: to many to count! Thats where I am now as far as this disease goes. I hoped this helped my friend! GOOD LUCK!
About 4 months ago I woke up with numbness in my feet. I thought nothing of it. Kept trying to go on. But this numbness kept going on and got all the way up to my thighs. I was scared. Kept on thinking it would go away. But finally went to my doc 2 months later. He checked my blood to make sure it wasn't some kind of vitamin deficiency. It wasn't so he referred me to a neurologist. He checked nerves on my legs and everything was good. Told me he thought it was something with my spine and brain. So off to get MRI He called me the same day with the results. Signs of ms in my brain and spine. I nearly collapsed. I felt like life was over. So scared. So sad. 4 months later have some numbness in my feet still but not as bad as it was. About to start taking gilenya. I am so scared of side effects. I just want to live normal take care of my family. I am just so afraid.
The majority of healthcare professionals said it was syco somatic ( all in the mind) it was when I went to get my eyes tested for a glasses upgrade the young optometrist suggested I get tested for ms after testing it was found I had had ms for the past 5 years with 37 leasones on the brain and down my spinal cord that was 12 years ago thank god for optometry .
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