Wat is bad I can't seem to get straight answer of what to expect next she is in and out of hospital almost every week due to ammonia levels now with fluid building up I'm goin crazy cuz we don't know what else to expect
Is she on Lactulose for her ammonia levels? My husband was diagnosed in 2008 & was told he might live 2 years. We have been diligent in following DR's orders, taking medications as prescribed, eating healthy, etc. He was still in & out of the hospital many times. He couldn't get on the transplant list because he's on parole. He quit drinking 11 years ago but it was too late. I offered to give him 1/2 my liver but the state of TN does not do live donor surgeries for livers. Everytiime he went for blood work we were on pins and needles til the results came back. We knew eventually we would get the news that the Hep C had caused the liver to become cancerous & at that point there was no help for him. But, about 2 years ago they came out with a trial drug to cure Hep C. It's very expensive and we didn't think his TennCare would approve it but they did. It is a miracle drug! He was sposd to be on it for 6 months but at 4 months the Hep C was 'undetectable' in his body!! That was 2 yrs ago & he's been tested several times and it's still'undetectable'! Which means it won't advance to cancer. So it's just at a standstill. He won't get better but it won't get worse. His friend was also put on that same drug, but his dr only put him on it for 3 months. His was 'undetectable' also at the end of 3 months, but at 6 months it was back. The cost was like $1,000/day! I wish the best for you & your mom. If I can help in anyway, let me know. Has her dr not mentioned anything about getting the Hep C under control. Has she had any episodes with the esophageal varices? Where she throws up unimaginable amounts of blood?? They have to go down the throat and put tiny rubber bands on the blood vessels to pinch them off. He's had that surgery 3 times. The Dr couldn't believe he lived thru the 1st episode of throwing up so much blood. It is pretty much unheard of to live thru it 3 times!
Its an ongoing process ..prepare it will happen again. Hope for the best prepare for tbe worst. Amen
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