I have been asked to think about having Botox, and was wondering if anyone else has already had this done. What was it like, and have you had any side affects good or bad. Thanks, Liz.
Migraine sufferers, has anyone tried Botox, what do you think?
Added 8 Jun 2012:
I thought I would update you all about getting the Botox, it was denied by my insurance on Monday of this week. Then the Dr was so mad at them and she wrote a letter on my behalf, and yesterday whilst I was at the hospital I got a phone call to say they changed their minds and they will pay for the Botox injections. At last something going my way, So at 3pm this afternoon the Dr will inject 31 places to help with my Migraines. I am so scared she will hit a nerve, or I will have one of my reactions to the Botox like everything else I have had lately. Have a great rest of the day to you all, and take care and cross all those fingers that this will be the answer to these horrible headaches for me. Liz.
I have had 5 Botox treatments to help prevent my migraines, at times I was having migraines daily or several a week. I found that it works to stop migraines from lesser triggers, but will not allow you to eat or due things that would cause a severe migraine as you will get it to a lesser degree. Mild migraines you likely will not feel at all. It takes 1 to 2 weeks to start working and has lasted for me 5 months ( this varies by the person).
Botox injections have given me tremendous relief. But the first time I had it with 100 units, it did nothing for me. But when the doctor raised the amount to 225 units, it was a remarkable difference. I need them every 10 weeks, but then I had exceptionally severe migraines from a stroke. No real side effects other than some tenderness where the injections were temporarily. Definately worth the very short pain compared to the migraines. Plus it takes away any wrinkles in your forehead. LOL
Oh, I just saw your response to the last answerer. I now get a total of 25 injections--more than I was getting originally. It does hurt across the forehead, but so quick is the pain. The majority of mine are in the back of my head, top of my neck and shoulders. If you have a problem with needles, see if they can give you some medication to put you out of it some.
And yes, I do still take 3 daily medications as prophylactics and also need pain medication about 2x per week for severe migraines. Plus I still badly need nerve block injections every 4 weeks. But remember, my migraines were severe 24/7 and thought to be very difficult to treat due to the cause being my stroke. Now having mild headaches most days of the week is a stunning improvement for me.
To shopgirly and others,
You said that your insurance does not cover Botox. Mine didn't either. We contested it through the insurance company, then you can appeal their refusal to give it to you through your State insurance agency. Our state in Michigan said that the insurance company would have to cover it. One of our arguments was that the FDA had approved it for migraines on October 15, 2010. If you have migraines at least 15 days out of the month and have unsuccessfully tried daily prophylactic medications and you have a doctor's letter stating those things and that they think that you would benefit from it, then you have a good chance of having it covered.
I know that may seem like a lot of work to many of you. I was just so desperate for the help. The first several injections I paid for myself and saw the terrific results before the FDA approved it. Once it was FDA approved, we went on the "band wagon" in pursuit of having it paid for and won.
I tried Botox 7 yes ago before FDA approval. It did wonders for my wrinkles but not so much for my Migraines. Exactly 3 days after Botox injections I suffered the worst migraines the 5 times I had Botox. Migraines still happened but they were fewer and less painful. However the lesser pain still did not allow me to function since Botox did very little to address my other migraine symptoms; vertigo, dysarthria, confusion, nausea , sensitivity to light and sound, and more. I was still nonfunctionable. In addition I tried Botox for wrinkles and believe it has caused me to have double vision and possibly paralysis of the diaphragm. I say use Botox at your own risk.
I tried Botox and, unfortunately, had an allergic reaction to it. It was not too severe but did make my headache worse for a couple of weeks. My eyes and face got swollen and I had sinus swelling and pain. I developed minor wheezing and some swelling in my throat as well (not too severe either.) While these symptoms eventually wore off, my doctor and I agreed that it would be too dangerous to try again.
Since the allergic reaction also gave me a headache, I can't tell if the Botox would have worked if I were not allergic to it. I'm glad the allergic reaction wasn't too severe, but I would say that is something to consider if you have other allergies.
The shots are not as painful as you may think they are. I have only had one round of shots so far, and the treatment has really helped with my headaches. My doctor told me that it may take a second round of shots to get rid of the headaches completely.
The only side effect I have had is migration of the Botox to below my eyebrows and my right eye is about 1/3 of the way closed. In my opinion, it looks awful and disfiguring. I will not have the shots again unless my doctor agrees not to put any shots into my forehead. I have not put pressure on my forehead except for sleeping.
You have probably solved your problems with Botox by now, but I just thought that I would post this answer for anyone else considering Botox for migraines.
I have had Botox injections for about 5 years and they help some, they seemed to work better the first few years. I'm now in a situation where each treatment I debate doing bc I wonder how much good they are actually doing but, scared to not get them and be in even more pain day to day than I already am. I just had to start topamax again recently so, I may need to take a break from them. They are definitely worth doing and I don't find the treatment very painful and it's quick.
- Botox Information for Consumers
- Botox Information for Healthcare Professionals (includes dosage details)
- Side Effects of Botox (detailed)
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