Migraine - Can anyone help me with some suggestions/input on my chronic Migranes?
- 31 Oct 2013 by KCzRxz
- 13 Dec 2013
- migraine, headache, anxiety, pain, nausea/vomiting, chronic pain, doctor, chronic, stomach
Hi, I'm new to the group.
I have suffered on and off from migraines and tension headaches (or a combo of both) for a very long time. I had one doctor helpfully advise me to just "get rid of the tension." Pain makes me extremely nauseous - especially migraines. I had a bad spell where I was vomiting so severely that I broke three ribs.I took midrin a long time ago, I think it helped some, I don't really remember but I guess they don't make it anymore. I have a high degree of stress an AM extremely tense in my whole neck, back, shoulders... etc. I also have several bulged discs in my c-spine and chronic pain issues in my back. The migraines a Soooo bad again. I'm on antidepressants already, pain meds (going to see new Pain Doc soon to get on the proper stuff). I take a bunch of medications already and have been on or am on a lot of the meds this site lists. I'm back in PT where my neck has been worked on a lot. I also have TMJ and clench my teeth. I'm trying more relaxation exercises for my jaw, using heat on my neck and ice on my eyes, dark rooms... blah blah. I have severe stomach problems, so I'm on nausea meds and because of my stomach, my primary won't allow me to take NSAIDS. She gave me a steroid pack to help with the inflammation. However, they are so bad and you know that you become useless and debilitated until they subside.
Because of my meds and physical issues, I'm not sure what to do. Do I discuss it with my new Pain doc? I don't want to take the steroids, I'm on a variety of meds and I know the neck therapy is very necessary (also I cannot just get rid of the tension/stress).
Several of the members get Botox injections for their migraines. The overall concensus seems to be that they work very well. Perhaps you can discuss the option of Botox injections with your new pain management doctor. Tension and stress are definitely triggers for migraines for many people. But, as you said, you cannot wave a magic wand to make the stress go away. You can, however, control how you react to it. Even that takes alot of practice. It's not an easy fix, I know. Best wishes for you to find a resolution of your headaches, KC.
In addition to the Botox injections, you could try nerve block and trigger point injections which relax the tight muscles in your neck and shoulders. Botox is generally for people who have migraines 15 days or more a month.
If you take any pain reliever more than 2 or 3 days a week, you risk rebound migraines. The very first thing to try is a daily preventative migraine medication. Any doctor could prescribe those to you. Have you tried that? If so, then try the injections where you would need a pain management doctor.
I've suffered from migraine headaches for almost 50 years now. My father dealt with migraines his whole life.
During this time, I have been on just about every migraine treatment there is (except for Botox).
A little more than 10 years ago, my doctor wrote me a prescription for a drug called Imitrex. At that time, Imitrex only came in an inhaler form.
For me, it worked like magic! I call it my "miracle drug ". Today, Imitrex also comes in a pill form. Because the inhaler left a really bad taste going down my throat, I was very glad when I was able to switch over to taking Imitrex in pill form instead.
I like Imitrex because I only need to take it when I feel a migraine coming on -- not every day. it works 95% of the time for me. Does not cause drowsiness, and my headache virtually disappears.
Because there are many times when I get migraines 15 days or more during a month, I sometimes have to get special permission from my doctor before the insurance company will pay for enough pills. My doctor prescribes me the 100 mg pills, and there are nine pills in a prescription. I break the pills in half, and that way I get 18 doses instead of nine per prescription. I have never had a problem getting my doctor to authorize me to get extra prescriptions due to the frequency of my headaches.
Good luck to you!
I am also new to this site and have learned so much already.
I also suffer from chronic migraines.
I have tried about everything out there ( not botox shots ) including oxygen treatments. I also have Hep C. and was mistakenly put on a medication for high cholesterol. This caused me to almost immediately get thrown into a horrible bout of cluster migraines. My Dr and I finally found a "cocktail" of meds. I take imatrex injectable at the very beginning. ( I get the " Ora" feeling at the onset) and if within 30 minutes I don't start feeling the relief coming. I take Maxalt. Its a large pill that I put under my tongue where it dissolves. I go to my room, which is dark and cool, and do my best to fall asleep. I'll say that at least 80% of the time it works. If not, its unfortunately a trip to the office. I'm thinking of trying the Botox next.. Anything is worth a try when you deal with the amount of stress you seem to.. Also.. Yoga helped my sister with her stress, which in turn, helped her migraine frequency! Good luck.. I hope you get the help you need..
A understanding new friend..
Thank you all for the suggestions and input.
I'm either on or have been on most of the "preventative" meds. I also have severe stomach problems and, despite tolerating them in the past, my primary has forbidden me to take any sort of NSAIDS (my stomach is so bad right now, she doesn't want to risk bleeding), plus OCT and prescription anti-inflammatory meds have never worked. Also, I have a really nasty reaction to Imitrex.
She ended up putting me on a 6 day Prednisone pack to help with inflammation.
The migraines are happening daily and I know stress and the increase of PT on my neck exacerbates the issues. However they started (this more recent spell) before the PT. She's (my primary) not fond of my occasional use of Excederin Migrane. So, dark rooms, extra Zofran, heat on my neck and ice on my eyes...
I'm aware that my pain meds can cause rebound headaches - that's why I'm going to see a new Pain Doc. I'm weary of more pills (trying to reduce w/pain doc and I clean house when I find that a med doesn't really do anything or help, I don't want to take it) - I'm a walking Walgreens.
Yes, I'm very frustrated. There has to be something!
However, thank you all for everything - I'm really learning a lot.
Check to see if you having any bulging disks high up in your neck! Got yo an oral surgeon or a chiropractor to make sure the bursa pockets in your ear and jaw joint are in an alignment. They can shift. If you look up dermatomes on line it gives you descriptions of what disks an nerves travel to and from... It's very interesting to see the path of the nerves. Normally the high up cervical disks effect the face aka C1 C2 C3 .
I have Botox injections for Migraines and they work! It's amazing not to worry about having a Migraine come on in the middle of an important meeting and causing me to be sick for days. The Botox shots have affected my life for the better in so many ways and my insurance company pays for the shots as they are not being used for "cosmetic" reasons.
Yes, Botox completely changed my life along with the nerve block and trigger point injections. Plus I wear Butrans patches (an opiate patch), plus an herbal med called Petadolex which was the only preventative med that helped me and didn't cause any side effects. Plus I take Magnesium and COQ10. I also do my PT exercises to loosen up my neck which helps me. Plus I take Atenolol and Pristiq which also help the migraines. Also I have Maxalt and Fioricet for severe migraines. That's a LOT I know, but my migraines were caused by a major stroke which makes it very difficult to treat. But if I have found significant relief, so can YOU. The Botox injections alone have done wonders for me. But you better not ask for the Butrans patch as that will put off the doctor thinking that you are drug seeking. You can get a lot better. Believe it.
Do you see a Neurologist? I've had debilitating headaches that last up to a week, 24/7, and even the oxy from my PM dr for chronic pain in other areas of my body, pre and post surgeries & with injections every 3 mos didn't help my headaches. Then I was referred to a wonderful nuerologist (my headaches are not migraines) started me on Fiorinal & Botox injections and for the 1st time in about 13 yrs, I rarely have headaches! I went in expecting nothing as nothing has ever worked. I hope you find what works for you soon as headaches, like you said, are worse than any other pain, between the foul smells, the blinding sun, the naseau, the wanting to bang your head against a brick wall, the ER visits for inj of dilaudid, ... hoping you find your treatment and soon!
Have you tried topamax? My neuro put me on that and it helped a lot but it's a pill that you have to take everyday. It won't stop a migraine but if you take it everyday it will help prevent them. Hope this helps.
Have you tried Cranial-Sacral work? This is done by a massage therapist or chiropractor - usually Alternative Medicine provider. It's kind of like a massage that greatly helps relax the body but it isn't a massage. Hard to describe! Also have you tried a steady dose of a beta blocker? Inderal used to work for me when I had a run of every-single- day migraines! Hope you get relief!! EJ23
The steroids are not good for you; I would avoid those if you can. If you don't wear a mouthguard for grinding at night; I would look into that.
First line of defense, would be a triptan like Zomig or sumitriptan, then I use Fioricet, then for the migraines if that doesn't work about two hrs later I use as a last resort a narcotic like percocet. Triptans and/or narcotics are limited to 3x/wk. I alternate with ice and heat on my neck. Rest in the dark, hot shower. Not alot helps really. I have tried nerve blocks and countless meds, lidocaine/steroid injections already thats why I am telling you not to bother with those. Don't bother with nerve blocks either. I did the nerve ablation which is severely painful and doesn't work; they promise you the world bc they want your money at the pain clinic, but it doesn't work and there is alot of risk involved. Minimize stress as much as possible, take fish oil and as much natural anti inflammatories as possible. I am now trying a gluten free diet to see if that helps. Just started about 5 days ago, so far nothing; will give it until Christmas. If anyone has any other suggestions for me, please let me know. I have tried physical therapy in the past as well. I actually had a meningioma removed last year and my migraines have increased in intensity and in number. Feel like I have tried everything. I have seen several different neurologists/have been to the Diamond Headache Clinic in Chicago, IL as well and have been turned down by the Mayo Clinic in Rochester IL as they feel they have no new treatments or medications to offer me.
Hello. It has proven helpful for people to switch to a gluten free diet. Many people who have migraines have been helped as the condition can be due to an allergic response to gluten. One does not have to have Celiac disease to exhibit symptoms. There are also now two forms of the disease. Since the genetically modified wheats have appeared many conditions have become worse. If you have not tried the diet adjustment, please give it a try for at least a couple weeks. You may well fell better. People with chronic inflammation are helped as well. Thought you all should know.
Marijuana cures migraine headaches instantly
Migraines are tricky because there are hundreds of causes. Here are some options:
1) Food allergy/sensitivity. Any food is a possibility. Do elimination testing or food allergy testing with a naturopath. Gluten is a common trigger. Other common triggers are dairy, tea, coffee, oranges, and eggs.
2) 400mg Magnesium + 100mg B6 daily. This occasionally makes a huge difference in the magnesium-deficient person.
3) Chiropractic and/or massage and/or acupuncture. The upper three cervical vertebral have neurological connections into the brainstem which can trigger headaches, jaw clenching, trap tightness, etc
4) Emotional Freedom Technique (I'm not big on EFT, but it works for some people)
5) Psilocybin. The National Geographic did a Drugs Inc special on psychedelics and in that episode they interviewed a man who had complete relief from cluster headaches (slightly different than migraines) by consuming magic mushrooms once every two months.
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