I normally had 10 mg included with my Benlysta infusion, but Rhu. upped it to 100 mg. Is this okay to take every 4 wks and what might I expect? I have been on Benlysta for 4 yrs now and mainly go thru the pain of it all as I have more energy and less pain(s). I LOVE that my headaches are 80-90% better. I am 62 yrs and lost my left kidney to SLE when i was 15 yrs of age. Doctors didn't label my illness as Lupus until 1995 and in 1996 I started on plaquenil 200 mg once a day and have been on it ever since. I must take the brand name only or my stomach is even more upset and with more gas. :( My insurance is billed $15,000. per infusion and my co pay can be as high as $750.00 which I find appalling for healthcare here in the USA.Thank you for any insight and your stories too. woodsaz
I’m an Oncology RN and also an SLE patient and Benlysta user. Frequently we give Methylpred as a premed for both stem cell transplants and chemotherapy. First , I’m wondering why your Rheumy thinks you need it, perhaps you’ve had reactions in the past? My office does not give premeds for most of the Benlysta patients. That being said the only effect that you might have w Methylpred such as racing heart (tachycardia), jittery, ringing ears, nervousness and insomnia. However since this is a one time dose and would wear off within 12 hours.
Hope this helps.
- Benlysta Information for Consumers
- Benlysta Information for Healthcare Professionals (includes dosage details)
- Side Effects of Benlysta (detailed)
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