very rare..diagnosed by a sleep disorder doctor in the sleep clinic..
Is there any medication for the rare sleep disorder idopathic hyperinsomnia?
- 31 Jan 2015 by my daughters mom
- 14 Feb 2015
- sleep, doctor, hypersomnia, disorder, diagnosis
Added 2 Feb 2015:
I have just joined this group..my daughter has this rare disease and we are actively searching all channels for help..there is no cure and no medication for this disorder and it certainly changes ones life and the loved ones around..my hope in joining this group is to check with other people who have this and how they are coping..I wish to thank Delila for her input..
Yes, there are medications to treat hypersomnia (not hyperINsomnia). I have lived with this illness for six years and my family doctor and sleep specialist both told me I had the worse case they had ever seen. The best medication is Provigil (Modafinil is the generic form). However, it is a very expensive medication. If you have insurance, they will probably require you to get a note from your doctor saying you need this medication for hypersomnia. I had to go through this procedure, then my insurance paid for it. The second alternative is Nuvigil, which is mostly used for night shift work disorder, but hypersomnia patients take it if they can't handle the Provigil/Modafinil. Nuvigil is made by the same company as Provigil and is also very expensive, so you will probably have to get a note from a doctor saying you need this medication. Other hypersomnia patients take Ritalin, or other stimulants typically used for ADHD. Some patients taken Adderall. I can tell you from trying Provigil, Nuvigil, and Ritalin, Provigil is the best for waking you up because it works on the brain in a way that Ritalin and other stimulants do not. I do not take well to stimulants, so I gradually increased my dose of Provigil to the recommended dose. If you have been diagnosed with hypersomnia, your doctor should have prescribed something. If you have not seen a doctor yet, you should as soon as possible because hypersomnia is very difficult to live with, and the sooner you get on a medication, the better. I have read and have experienced that any hypersomnia medication sometimes will not work, for reasons unknown, but eventually it will kick in again and start working. Sorry for the long answer, but I hope this helps. Good luck.
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