Hello everyone, I've just joined the group. I was diagnosed with LC in August after having horrible symptoms every day for over 4 years. I'm currently on Lialda. At the beginning of October I went into spontaneous remission for about 3 weeks. Everything was absolutely normal, one BM per day and it was solid, no distention, etc. That was the first time in more than 4 years that I was normal. I've since had a flare up and I have been miserable ever since. I'm trying Pepto, but it doesn't seem to be working. I haven't made any diet changes, however, and have been told to cut out Gluten. While in remission, though, I didn't make any dietary changes and was still fine. Does anyone have any advice on Gluten, Lactose, etc.? I love to eat bread and pretzels and hat to stop eating them, but if it will make life easier, I will definitely do it. Thank you everyone, and it's good to be here with others who know how bad this is. It litterally consumes my entire life
Im sorry to read about your health. I too am a Gluten Free for life and also been diagnosed with Ulcerative Colitis and have never heard of your condition before. I however have just read about it, it does not state that you should be gluten free but if it helps then may i suggest a diary first so that you can write everything in it that your comsuming to help identify if you need to be gluten free ?
Gluten makes the body stodgy, like a potatoe feeling in tummy. I dont mind not eating bread, i do miss my fish and chips though... Wheat, wheatflour, Barley, flapjacks, cakes and pastry's ... infact anything of that substance coated flour... is strictly forbidden. I know you must be thinking thats hard but infact its so easy once you know the forbidden foods. I found out as soon as i started eating gluten free that my body became so weak and my knees ached and so did my joints (which i have no idea as to why but i know at that stage i did have the runs consistently and then they put the camera down my throat, and diagnose my condidion) but soon as i stuck to it, the tiredness and dull looking me became alive. Back then i couldnt even comb my hair, how i struggled to work day by day and cook, clean and tidy the house i never know.
Please take vitamins to help you, no cheap stuff, i shop at Holland and Barrat for my stuff.
I also purchased Aloe Vera, lots and lots of people have talked about it to help Colitis. I take the tab form and its really helped me on my way back to recovery from UC, i was in hospital with a very bad flare and then decided to take these when i came out and touch wood its worked fine for the last 6 months. I also take zinc, 15 mg daily. My blood levels have rose which is fab.
Sorry im diagressing, back to the point, its awful to be diagnosed Gluten Free but the worst one is Colitits, that i absolutely hate, if hate is the biggest word for loathing then HATE it is for Ulcerative Colitits. You can purchase gluten free bread at most major superstores and also if you don't work you can get them free on prescriptions (bread,biscuits, pizza bases and pasta) or if you do work you can get a yearly pass for nhs prescriptions and it works out just under 11.00 pound a month and it covers all your meds including Colitis medication.
I eat cornflakes for breakfast, chicken salad or Baxters Soup (because that one brand is gluten free) for lunch and maybe a curry with rice (no naan bread or chapatis) or a cooked dinner with gluten free gravy for tea. But please read labels, read and read and you be surprised how many products actually do contain gluten and barley.
I do wish you good health, Colitis is awful, whatever form we have of it..If you have any further questions please ask. Take care.
Lymphocytic Colitis occurs most often in people with Autoimmune DIseases like Celiac Disease and Hashimoto's Thyroiditis. It is an inflammatory condition. Gluten is the most inflammatory of foods, and is the most common food to cause allergic reactions.
The goal of treatment for Lymphocytic Colitis is to decrease the inflammation in your colon (hence the Lialda) and to quiet down your immune response, which is activated every time you eat foods you are allergic to.
Thus it would make sense to eliminate gluten, as even if you are not allergic, it will still be hard to digest and likely to cause inflammation. You might also try a general elimination diet, and reintroduce foods and look for response. However, if I were you (and I do suffer from this condition), I would never rechallenge with the gluten. Try googling Anti-inflammatory diets to learn about other foods that can cause inflammation.
- Lialda Information for Consumers
- Lialda Information for Healthcare Professionals (includes dosage details)
- Side Effects of Lialda (detailed)
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