... work on the pain only makes me feel bad. However, I get a compound cream which has gabapentin, ketamine and clonidine and surprisingly, it does work short term topically. Enough time for me to get me breakthrough meds working. I want to stop the gabapentin completely, even just the cream gives me dry mouth, dizziness, and vision trouble. Is the such a compound that can substitute gabapentin with something else? and how long should I take to wean myself off of the gabapentin safely? (sorry about the long post, I'm new and happy to have people like me to talk to and learn from) :)
I can relate. I have been on so many meds over the last several years before finding what worked for the long haul. If you have found something that manages your pain, then work with your doc to get off all that is not necessary. Always go through your doc to get off meds, especially gabapentin! Since you mentioned trying to find something else besides gabapentin, I sort of assume you still haven't arrived at a good pain management situation. One thing I do is keep a daily health journal. Had to when I was up to 24 pills per day, plus patches and topical. The journal eventually helped clarify what was working and what was not. It helped find what things I did each day that helped or hurt. It sort of helped keep side effects straight. By journaling, I learned when to take meds to have the least side effects. I learned that I would pay a big price if I skipped gabapentin for a couple days and got far enough along in its half-life, because it seemed I would go through the initial side effects all over again each time this happened. I think this can happen with topicals. I learned to stay away from grapefruit or anything with grapefruit in it, because it causes an interaction with gabapentin. I learned that antacids and other gastro meds can multiply or diminish effects of oral meds, so dosages are actually jumping all over the place. Meds work so differently for each individual that docs often do experiment on the patient to see which of the many options helps. They need to know when it is not working, so they can get you off it. They need to know if it is working but the side effects are bad, so maybe they can try a different med like lyrica, carbamazepine/tegretol or lydocaine patches. A journal can help remind you what to talk about at an appointment. I know I sounding preachy about the journal, but for people in pain, it is the best advice I can give.
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