I have had almost all the symptoms on SLE since i was 17, from the butterfly rash to my body becoming severly septic and kidneys shutting down to most constant issue... PAIN. I have pain that is so suvere at times I becomes so aggravatied and overwhelmed I will pace, rock back and forth, be in such agony I willnot get out of bed but o relieve myself for days. The cold weather, air stiffings me up and sends dagers n to my body. My hands,wrists, elbows,shoulders, neck and upper back an long with my lower back that consists with dull ache pain that throbs constantly. my feet swell and are beet red with pain, my legs and my knees. it is hard for me to stand and walk with out forcing myself to scuffle and waddle to were my legs will feel normal. constant migraines, so severe that I faint or am down for a day or two. spells of shaking with my hands and head not able to control. I am constantly tired overly tired, getting upset takes my energy to a drastically low un functional level. what am I feeling is it common and what are the next steps I should take . I need to what are my options are?
Yes, unfortunately those symptoms are very common but you should at least have some days with less pain. I know that prednisone is an effective anti-inflammatory that is often prescribed to help relieve most all of your symptoms. Good luck and keep us posted on how your feeling. As long as you know that there are others out there suffering the same, you know you have people to talk to. So make sure you do to avoid depression
Are you seeing a good rheumatologist? That is the first step - check reviews when you search for one. Have you tried any of the biologicals? They are meds that suppress the immune system and stop your body from attacking itself. Those, and methotrexate, are often used for the RA and I found some examples as well for lupus. Also, steroids can help during active phases of the lupus. Your life sounds pretty bad - if it were me, I would try the biologicals. Yes, they have significant side effects but better to be alive and have a life that is good for 10 years than to just exist for the next 20-30 years. I have a friend with RA and his first year on the biologicals his pain dropped to almost nothing - he pretty much rebuilt his entire house. Now it's not as good, but you can switch meds and get good effects again. I hope you can find help - I wish you the best! - EJ23
It seems you really need to consult your GP and get an appointment with a Rheumatolagist. If you are suffering as you are you really should get sorted. I have ended up in a really bad way with good help with help from both of mine but still need other expert help with other ailments and severe depression. It doesn't matter what other people take on here, medication wise, that is for them and not tailored for you. This is highly unorthodox and dangerous to follow. Your GP is your first port of call, he/she is not understanding, find someone who is.
I feel for you and your suffering, here's hoping for pain free days soon!
I am a patient ao RA as well and has been for the las 10 yers.
Looks to me that you need y to visit a rheumatologist ASAP. I have use metrothexate for a long time, but on my case did not help. Whay really worked for was , is, Decadron 4mg tabelts.
I hve heard very goood things abut the new generation of bilogicals. Maybe you should visits a reunathologist a give them a try. Ihave not because RA is not may main concern these dys, cancer is, and I am on one on very heavy treatmetnt that keep me from it, so I am back to my old and alwasy trustworthy decadron 4 mg a day. When a ever a "flair" attacks me here is what I do.
Day One Two Tabltes Two Time a Day
Day Two Two Tabltes Two Time a Day
Day Three One Tabltet Two Time a Day
Day Four One Tabltet Two Time a Day
Day Five One Tabltet Two Time a Day
Day sisx One tablet One time a Day
That I what is call a Shack treatment"
I also suggets to keep you eyes moisturize you eyes constanly. Dry eye syndrome usually "travels" together with RA.
But I STRONGLY suggest you to visist a Reumatholist first. The fact that this worked for me do not necessary means will worked for every one.
Good Luck, and ike another person mentions befeoe, keep away from depression, it will make worst,
Good Luck and be well!!
Hi I was diagnosed over 2 year's ago with lupus,fibromyalgia,chronic urticaria and depression.I have alot of ur symptoms but recently I ruptured the main tendon on the back of my ankle which leave s me in a cast 4 at least 12 weeks but the problem is the surgeon won't operate on me because of the Imuran im on 4 the lupus because I have no immune system.Everything is under control with my meds thank god and I hope ur doctor can control ur s too !
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