I've been on the fentanyl patches going on 6 years now. My side effects are insane itching and severe insomnia (no sleep at all for at least 24 hours) after changing my patch every 72 hours. Does anyone else have side effects like these, and if so... how do you cope?
Laura, have these side effects just started? I hope you have seen your doc by now. Sorry it has taken so long to answer you. I think they are working on the site and we may not be getting the questions very fast. You don't have to cope and if its a reaction to the patch, you need to have already seen the doc. If you get this will you please tell me what you have done, thanks
Unfortunately, the insomnia is a common side effect of this patch. Other than discussing alternative pain meds, you are up against a wall. Given the long term side effects you have been enduring, I would discuss with the doctor the possibility of switching you to an extended release morphine such as Avinza.
I can share that I have a neurostimulator implant in my spine that sends electrical stimuli to the area of pain interrupting the pain message getting to the brain. Many people with chronic back problems find this implant very useful. You actually have a trial period where they see if the stimulator will work before they actually do the implant. It is an alternative to the pain pimp that you might investigate with the doctor.
To read about the neurostimulator and pain pump, try the following site:
Hope this helps some,
Hello Laurasapp. My name is , and nice to meet you. Laurie had a interesting suggestion, the neurostimulator. I haven't looked up the link she referenced but after this post, I'll check it out. I really feel for you in regards to the pain. Some what blessed in as much as I experience what I call the normal aches, that go along with, doing chores and so on. But, when it comes to lack of sleep, I'm in the same ballpark, and the same team as you. Its a curse. Having said that there are medications, as I'm sure you are aware of that can help you. The one, that is via a prescription, is trazodone (Desyrel). its an anti-depressant, but is often prescribed to help you sleep. Its not as addictive as are the benzodiazepines. Usual dose might be 50mg. If you find it to strong, you can bring it down to 25mg. There is a medication and my mind is a blank.
I've searched my notes, many people on this sit use it, I was on it once upon a time, but for the life of me, I'm getting nowhere. I'll go ahead and post this, and then, take a few minutes (might be hours the way my day is progressing ha) and see if I can find it. best wishes to you laurasapp, be well.
Welcome to this site I used to in the 2000 years for about 3 years told Fentanyl 25mcg/hr every 3 days, once I started to have increased pain my new doctor was willing to increase my dose to 50mcg/hr when I increased it I became almost non-functional, I didn't itch over my entire body mostly on the area where I changed the patch, after trying to vary the dose how I used it the doctors came to the conclusion that possibly due to the fact that I am on the thin side and don't have much muscle mass that the medication just didn't disperse throughout my body and they had to just take me off the patch and change me to another medication entirely. this probably hasn't been much help to you but as far as it helping with pain control it was effective, Once I went to the 50mcg I just felt so drugged that it really scared me and I was glad they took me off of it. I wish you only the very best of luck and once again this is a good caring group and I am welcoming you and sure they feel the same Caringsonbj (Billy)
Weegee1946 here been on fentanyl 75 for six months no itching but insomnia so bad was up 72 hours streight my doctor cut me back to 50 and put me on ultram and xanax for sleep. Its working for me for the past two months and yes anxiety level was of the charts that also calmed down. Good luck with your situation I will add you to my prayers god bless.
- Fentanyl Information for Consumers
- Fentanyl Information for Healthcare Professionals (includes dosage details)
- Side Effects of Fentanyl (detailed)
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