I have been on xyrem for 4 weeks now and am now up to 4.5 grams twice a night. It helps me sleep better at night but I am seeing no changes at all in my narcolepsy symptoms. I know everyone is different, but can yall tell me how long it took for yall to notice a difference so I can have some kind of hope here? Thanks!
I take zyrem for narcolepsy and severe chronic fatigue. My first day after starting zyrem made me feel like a new person. I had energy for the first time in years. I never had the great feeling again. Although, zyrem helps and I could never live without it. Working is a struggle but I wouldn't be able to keep a job without it. After a while I had to ask my neurologist for more relief. I was then prescribed a medication to help me out during the day in addition to the zyrem. I hope this help! Good luck!!
I have read through many questions from people asking questions about their zyrem therapy and seeking help. I am really frustrated about the people that respond. It seems that most people that respond to questions know nothing about the drug and have never heard of it. I would never offer advice to someone about a topic I knew nothing about. I hope my information above with give you some support but also knowing that I am a zyrem patient and can speak from experience. I am on this forum for the same reason: to find support from patients who take zyrem or from healthcare familiar with the drug. Good luck "tiredofbeingtired". I know how you feel. Your not alone!!
- Xyrem Information for Consumers
- Xyrem Information for Healthcare Professionals (includes dosage details)
- Side Effects of Xyrem (detailed)
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