I've been on it for 10 years.
I just hit my 11th year on Remicade, so I would like to think I'm pretty educated on the subject, but I'm not because in my opinion, it's still an experimental drug. I started it when I was 9, and haven't yet had a reaction. We're kind of the guinea pigs of the medication. There's always a risk of cancer, such as lymphoma, so I guess the longer you're on it, the more of a chance you have of getting lymphoma opposed to a short term Remicade user. My doctors keep telling me that as long as it works and you don't have a reaction, then it's recommended to stay on it because once you stop, you may develop antibodies against the drug and you may not be able to take it again in the case of a flare, and may have to begin something else such as Humira. Hope this helps!
- Remicade Information for Consumers
- Remicade Information for Healthcare Professionals (includes dosage details)
- Side Effects of Remicade (detailed)
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