Just got "officially" diagnosed. Waiting on insurance so I can receive botox injections. Just took first dose and crossing fingers that it alleviates some of my symptoms
Is that also used in treatment of epilepsy, as in a neuroleptic? If so, I'm on something similar for generalized dystonia and it took just a couple of weeks (after a little bit titrating up my dosage) for my body to become used to it and for the complete results to become apparent. However, I realized some relief immediately! If this is going to be the right treatment for you then you'll notice some improvement the day you take it and it'll continue to improve with time. If not just keep going and don't give up because there are so many off label usages of things for dystonia these days that you will certainly find something to relieve your symptoms and the disease all together. I'm on Keppra (soon to up my dosages) and its working wonderfully! That combined with physical therapy (mines in home right now and the nurses and therapists are AMAZING, the outpatient therapy will be next for me but some sort of exercise with your medicine is amazing- done wonders for me!) also my neurologist has talked about Botox and how incredible a tool it is for people going through what we are going through. I'd definitely recommend talking to your doc about that as a combination to the current treatment. I've found in four going on five years since my accident causing my dystonia that you gotta try and keep trying until you find what's right, it's a process, and usually you'll probably need more than one therapy at once, even meds. This is such a complex disorder and still many folks don't know bout what we go through and even many medical professionals don't know much. It's just rare and more and more is learned each day. Stay hopeful, and you've got someone who understands you in your medical professional and RIGHT HERE, DEAR FRIEND!!! God bless you!
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