I'm at my wit's end. I am not in H.E. stage yet. I have a living donor, but my specialist wouldn't put ne on the "list" due to misinformation from the hospital. It's a lengthy ordeal to tell it all here, I'm unable to eat almost anywhere now. I don't eat meat because I can't digest the protein. In May, 2016 I became unable to process milk, yogurt and now the "Ensure" supplement drinks. I can't pass any of it. I also have a HUGE problem with trapped gas. Being unable to eat for fear of not being able to move my bowels is a a tremendously worrisome problem. Fruits and veggies are a no no because of the gas. Can anyone me? Is anyone this bad? I am beginning to suspect this may not be related to my liver but my colon. If it helps, my meld score was 17 two.months ago. Any insight is very much appreciated. I'm new here and look forward to hopefully getting to know some of you. Thanks again!
Hi Dix, when I first started with a recent bout of decompensated Liver failure where my MELD was 22 (4 years ago?), I embarked on a mission to get it lower (was not a candidate for a Liver then). On dairy (milk) only for 1 year got my MELD down to 1.2 (hovers around 1.3 - 1.4). I gave up meat as that induced horrible insane cramps/seizures. Now I'm a virtual vegetarian (lots of rice) and some pasta.
Now, I can only speak for myself here but I discovered totally by accident that a local (Australia) premium Sarsaparilla cordial (sourced from some Nth American root?), that I drink lots of in summer, had an amazing effect on reducing my existing liver function levels (presumably by acting as a kind of liver anti inflammatory) and my eyes actually turned white for the first time in ages. Normally I would warn against anything other than milk thistle which is known not to be liver toxic.
Now that I am on an even lower protein diet, my blood ammonia levels stay in the normal range and I was able to stop taking Lactulose (a extremely potent laxative that reduces blood ammonia levels) which caused so much gas and other issues. I can't really process animal fat anymore either; a couple of pieces of buttered toast and cheese gives me dreadful diarrhea.
I could discuss my actual diet in more detail but it might sound too repetitive and not very American
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