my daughter, age 34, has had over 1000 kidney stones. i know this is unbelievable but the truth.. she has done everything and doctors are beyond baffled... we have been everywhere even to mayo clinic.. she has done everything from diet and what not to eat and drinking lots of water... it has controlled havoic with her life... she is wife and mother of two young boys and would love her life without this awful curse... she is on a water pill which makes her have headaches and feeling terrible... she has had so many surgeries that her doctor frowns on putting her under anethestic. it is very difficult, as a mother, to watch her in constant pain... what can be done...
Do they know what they are made of? Has she tried drinking cranberry juice daily? It sounds like she's done it all. I've had a few of them, and I don't ever want to have another, so I feel for her. If she's left the Mayo clinic scratching their heads, I doubt I can come up with something new and unusual. Let me check the cleveland clinic web site and see what they say.
Sometimes diuretics or "water pills" can contribute to kidney stones. If the stones are calcium she needs to stay away from any vitamin supplements with calcium. Kidney stones form when there is a decrease in urine volume and/or an excess of stone-forming substances in the urine. The most common type of kidney stone contains calcium in combination with either oxalate or phosphate. About 75% of kidney stones are calcium stones. Dehydration from reduced fluid intake or strenuous exercise without adequate fluid replacement increases the risk of kidney stones. Obstruction to the flow of urine can also lead to stone formation. In this regard, climate may be a risk factor for kidney stone development, since residents of hot and dry areas are more likely to become dehydrated and susceptible to stone formation.
Kidney stones can also result from infection in the urinary tract; these are known as struvite or infection stones. Metabolic abnormalities, including inherited disorders of metabolism, can alter the composition of the urine and increase an individual's risk of stone formation. Hypercalciuria (high calcium in the urine), another inherited condition, causes stones in more than half of cases. In this condition, too much calcium is absorbed from food and excreted into the urine, where it may form calcium phosphate or calcium oxalate stones.
Other conditions associated with an increased risk of kidney stones include hyperparathyroidism, kidney diseases such as renal tubular acidosis, and other inherited metabolic conditions, including cystinuria and hyperoxaluria.
Chronic diseases such as diabetes and high blood pressure (hypertension) are also associated with an increased risk of developing kidney stones. Dietary factors and practices may increase the risk of stone formation in susceptible individuals. In particular, inadequate fluid intake predisposes to dehydration, which is a major risk factor for stone formation. Other dietary practices that may increase an individual's risk of forming kidney stones include a high intake of animal protein, a high-salt diet, excessive sugar consumption, excessive vitamin D supplementation, and possible excessive intake of oxalate-containing foods such as spinach. Interestingly, low levels of dietary calcium intake may alter the calcium-oxalate balance and result in the increased excretion of oxalate and a propensity to form oxalate stones. Some medications have been used to increase the passage rates of kidney stones. These include calcium channel blockers such as nifedipine (Adalat, Procardia, Afeditab, Nifediac) and alpha blockers such as tamsulosin (Flomax). These drugs may be prescribed to some people who have stones that do not rapidly pass through the urinary tract.
People who have a tendency to form calcium oxalate kidney stones may be advised to limit their consumption of foods high in oxalate, such as spinach, rhubarb, Swiss chard, beets, wheat germ, and peanuts. If she has tried all of these measures there is not much more to be done. She might want to talk to the Dr about switching diuretics, if she truly needs one, since diuretics can contribute to stone formation and some are worse for doing it than others. If she truly needs it, she has to then balance risk vs. benefit. Poor girl! I feel for her. I have had a few in my lifetime and they are not fun! I cant imagine having as many as she has suffered through!
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 19 Sep 2009 • 1 answer
Posted 22 Sep 2011 • 1 answer
Posted 12 Apr 2012 • 1 answer
Posted 21 Aug 2013 • 1 answer
Topamax - I developed a large kidney stone and had it remove. I never have had kidney stones and no?
Posted 21 Jan 2015 • 1 answer