I only have one kidney, due to kidney cancer. Now there is a 3 centimeter cyst on the one remaining kidney. Bosniak means it is probably cancer. They want to try and remove the cyst with a Robotic procedure. Has anyone gone through this Robotic thing? From what I gather, after surgery I will be on dialysis for awhile even if they save the kidney. Worst Scenerio is they will need to remove the only kidney I have and I pretty much know where that leaves me. You can't survive with no kidneys and since it was cancer (the first one) I am not a candidate for transplant. If anyone has any information, no matter how small, I would appreciate some sort of outlook on this. My kidney doctor was pretty up front with me, basically I need to have the surgery, no matter the outcome.
I had never heard of a renal Bosniak Cyst, so I did a little research to educate myself. If I am understanding what I read correctly, Bosniak is the renal cyst grading scale, but does not always mean cancer. I cannot give you the link to the article on the open forum because it is from an outside source. If you would like to read the grading scale, please send me a PQ and I will find the article again and send the link to you. Why can't the doctor do the surgery himself, rather than using the robotic surgery? Will he be doing the surgery remotely from another City or State? My niece had a robotic hysterectomy due to cervical cancer. She is cancer free now (Yippee!), but has been left with horrible upper abdominal pain where the lymph nodes(7) and fatty pockets were removed. Since there was no cancer anywhere but in the cervix, she doesn't know why that was done, and the doctor won't explain it to her. Best wishes.
Hi - I'm sorry you are in such a tough spot. A friend of mine's dad had the robotic surgery on his abdomen, I believe. He said it all went very well. As for if they should have to remove your only remaining kidney, then you would have to go on dialysis, yes. But dialysis, especially in the first few years, is a pain, no doubt, with having to go there three times a week. But you can still have a decent life. My father lived on dialysis for 12 years. For 4 years he was on peritoneal dialysis at home - 4 times a day he would remove a bag of fluids, via a catheter, from his abdomen. Then he would infuse another bag of fluids. Each time it took about 30 minutes.
After that he spent 8 1/2 years on hemodialysis, going in 3 times a week. The last couple of years was really rough - I wouldn't have opted to continue, but he was determined to stay alive. But even if you would have to go straight to the hemodialysis, you would still have many good years to be on this earth to enjoy the love of family and friends.
I hope you will be able to mourn the loss of your kidney, should it need to be removed, and go on to dialysis determined to get every good moment that you can. Kind regards, ElizaJane23
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