I was diagnosed with Interstitial Cystitis in 1995. I had my first experience with it at age 13. I'd go thru spells of this terrible bladder pain with no infection detected, only blood in the urine. I've had everything you can think of instilled into my bladder including experimental potions... I did have periods of "remission" thru out until I turned 35. It became chronic everyday debilitating pain. I have learned diet plays a large part in avoiding laying in bed with a heating pad. So age 35 my Urologist sent me to a Pain Specialist. I was on Oxycontin for six years with great pain control,able to hold a job etc... then in 2001 I moved 857 miles away to Ohio. My NC Pain Dr referred me to Cleveland Clinic which I followed for about six years til I couldn't make the hour and a half drive monthly. My question is this. Why can I not find a pharmacy wanting to fill my script for 150mg Kadian twice per day? I swear they look at me like I'm drug addict. All they have to do is go to their Pharmacy Board thing that shows when & where I've had my script filled the previous month. Plus I have insurance & I pay a copay. Previously the script was faxed by the dr to a pharmacy which is closed now. It's terrible for a legitimate chronic pain sufferer to go all over town trying to find someone to fill this medicine!
I agree! It is getting harder and harder for pain patients all the time. People look at those of us who dont have outward signs that something is the matter and they automatically come to conclusions. We dont LOOK in pain after all! Not all states have a Prescription Monitoring System data bank that shows your last fills. I'm not sure if Ohio does or not. So they may not be able to see your previous filling history especially if you have to end up using different pharmacies to find your meds each month. Kadian 150mg is also an unusual dose. It may be that they just dont stock it because it is not a drug they use a lot. Do they tell you they dont have it? Or do they just tell you they wont fill it? If they say they dont have it, you may ask to speak to the pharmacist at your neighborhood pharmacy and tell him/her "Look, you are my neighborhood pharmacy and I would like to be able to get my meds here each month. I have been on this medication from my Dr for quite some time and I expect to be on it for a while. Can you keep it in stock for me each month?" and see what they say. Kadian is an expensive drug and if they dont use it much they have to destroy it when it expires so that may be the reason they dont stock it because they dont want to buy a drug then have to destroy it when it is not used so it may be worth your while to ask a pharmacist if they can stock it for you each month. That way they know they will be selling it monthly and you can be sure of getting your prescription filled each month. If they act as if they dont want to tell them that you would prefer that they be your regular pharmacy and if they cant do this then you will find one who will because you need to have a regular pharmacy. Good Luck!
Many pharmacies have been harrassed by the DEA lately. They don't like to fill prescriptions for narcotics, particularly that much. They seem to have forgotten what we were taught in school, that people develop a tolerance to morphine and can end up on a very high dose and be safe. I have seen cancer patients on so much it would make the current powers that be curl their toes.
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Interstitial Cystitis - I have I c and wish I could die everyday its so painful...i lost my jobs and
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